Facilitations

[matthew55]

I've had the radiology and all I will say is that it easier to get a dry mouth wet than a wet mouth dry. 👍😊x

[David R]

Hi Matthew, I’m the same as you, nose twitches a lot and mainly my left eye surrounds go mad, think you said before your MND is Bulbar onset? which is the same as me. I’ve lost speech complete and swallow like you. get a few odd arm and leg twitches but luckily I’m still quite physically able to move them although they are a bit weaker. How are you getting on with the saliva? I’m still waiting for some help with having either Botox or radio therapy like you had.

Regards David

[matthew55]

Zoom is something I really don't want to do. 😞x

[Heather R]

The other day on Zoom I noticed I was twitching just to the side of my nose, hate seeing myself on zoom

[matthew55]

My tongue is on its last legs, but on the bright side I can't feel myself biting it anymore. 😁x

[Mary C]

Hi All, yes I get fasciculations[twitching] daily all over my body.I find I am more aware of them when in bed or sitting quietly.It is disturbing when I get them around my mouth.My Neurologist did say my tongue is affected which again is a horrible fact.Sometimes I can see my hands and legs twitching ..not a nice feeling but painless.Best wishes.Mary

[GaryM]

One place I do get them which always feels a bit odd is my stoma site.

[GaryM]

Bottom lip for me , I think it only effects voluntary muscles are eyelids voluntary?

Well mine are, otherwise they might close when I'm walking around. 😉

[matthew55]

No clue but it happens so probably, think sleeping 😁x

[Shaun]

Bottom lip for me , I think it only effects voluntary muscles are eyelids voluntary?

[Nettie]

My bum 😬

[SueM]

Mine was my top lip, one side only, thought I was trying to do an Elvis impersonation

[matthew55]

Twitching is spot on. The eye lids feel particularly strange 😁x

[GaryM]

Assuming that you mean twitching, I seem to get them everywhere. The only place I've not noticed them is, to use a phrase from 'Upstart Crow', in my cod-dangle. But there are no muscles there. 😁

[nunhead_man]

Really? I thought this was just my imagination or just tired eyes