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Good news, for me at least.

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    Good news, for me at least.

    My GP, who has known me for five years and was the first to identify my MND before vanishing at the start of Covoid, has returned. He is giving me an examination on Wednesday. It should be interesting as he is the only health professional that has seen me before and after. 😁x

    #2
    Excellent news. Best take your mask off so he recognises you 😁

    You making a list for him?

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      #3
      Well last night I had a long email chat with him but I will go armed with plenty of notes, boogie board and iPhone. 😁x

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        #4
        That’s great Mathew, Lynne x
        ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my ballance.
        I'm staying positive and taking each day as it comes.

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          #5
          Great you're seeing the same person. Sounds like you are all prepared and wonderful he's made an effort to contact you before hand. Should go well. 😘

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            #6
            Actually he contacted me because I had worried a nurse when I told her I had taken a full bottle of Senokot. Remember the Universe must have balance. 😁x

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              #7
              Originally posted by matthew55 View Post
              Actually he contacted me because I had worried a nurse when I told her I had taken a full bottle of Senokot. Remember the Universe must have balance. 😁x
              Maybe she was worried she'd have to clean up after you. πŸ˜‰
              Each day is made easier with a bit of humour.

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                #8
                Very droll mate, just so you know it's a very touchy subject for me at the moment. πŸ˜‰πŸ˜x

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                  #9
                  Did you tell the nurse you took a whole bottle and nothing happened 🀀

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                    #10
                    Originally posted by matthew55 View Post
                    Very droll mate, just so you know it's a very touchy subject for me at the moment. πŸ˜‰πŸ˜x
                    It is for me as well, Matthew. Spent an hour and a quarter on the throne the other day. Tried DulcoSoft which helped. Plus a bowl of Branflakes which are a high risk food for me. I think if we don't find the humour in our suffering, we'd be cutting our wrists.
                    Each day is made easier with a bit of humour.

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                      #11
                      Hope you get a meaningful and reliable solution to your bowel misery, it just takes over your life 😩😩 (My latest trick is plenty of fairly hot water through my tube - a top-down enema, if you will...) x

                      ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                      Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                      ​

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                        #12
                        Hi Ellie

                        How is that working? As another bowel fanatic I am always looking for new ideas x

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                          #13
                          Thats good news Matthew. Its always helpful to see the same person ... I hope you get some answers x

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                            #14
                            Originally posted by slp View Post
                            How is that working?
                            Works a treat for me, Sarah. I still take my regular laxatives (a mixture of Senokot, Docusate Sodium and Movicol) but taking 500ml of hot-ish water through my tube results in a trip to the loo about 20mins later πŸ‘ I don't do it every day, mind you.

                            Love Ellie.
                            ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                            Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                            ​

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                              #15
                              Ellie I want to have your babies πŸ‘πŸ˜x

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