I've been dealing with freezing hands and feet, disturbed sleep, and that's without talking, eating and making love. But last night found a new low. I had an overwhelmingly desire for a cold drink, I wanted that feeling as it goes down your throat. Back in my days of alcoholic denial I kept my beer in the fridge. I know I'm going to heaven when I die because I am living in hell. πx
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Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxx -
I was looking at YouTube and it was all about cold icy drinks being good for the gunge that builds up in the throat and cold showers and outdoor swimming being good for the body. Can't say I'm going to try it but that might be why you want a cold drink. πwhen i can think of something profound i will update this. -
Probably nearly 50 years ago there was a lager called Harp and had the slogan Harp stays sharp to the bottom of the glass. Well one very hot summer my friends and I arrived at a pub and I had a pint. It was ice cold and i greedily and thirstily gulped it down. I can still remember the chest pains as it went down. I never ever drank it again.
RichardRichardComment
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Some beer has a lot of gas which can really upset the insides. Probably best having British traditional warm beer. πwhen i can think of something profound i will update this.Comment
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My point was I am close to NIL by mouth. πxBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxxComment
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But close to nil means you could have got a cold beer down πwhen i can think of something profound i will update this.Comment
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Iβm same could kill for a nice cold Gin sometimes but just canβt manage it βΉοΈOriginally posted by matthew55 View PostJanette xComment
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Jeanette I'd offer to drink it for you but for some reason alcohol makes me ill. πwhen i can think of something profound i will update this.Comment
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It did me last time I drank it π€ͺ teetotal from now on π€£π€£ x
Janette xComment
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Denise and Janette, cruel disease taking away your G+T pleasures. I have one frequently before our evening meal. I now will think of you girls as I partake whilst Iβm still able. LynneALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.
I'm staying positive and taking each day as it comes.Comment
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I give up βΉοΈBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxxComment
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Think we should talk about Lynne behind her back. πππwhen i can think of something profound i will update this.Comment
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Yeah mate, I understand...Originally posted by matthew55 View PostβDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Significant bulbar impairment - No functional limbs - No speech - Feeding tube - Overnight NIV - Eye gaze user.
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And I understand and appreciate your reply El. ππxBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxxComment
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