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    Cheek biting

    This is one symptom you don't often hear mentioned but it drives me round the bend. Biting my cheek and lip. There doesn't seem to be any way of avoiding it, I'm already eating very slowly and carefully. And of course once you've done it, that part of your cheek swells a little and becomes an even more likely target for your unruly teeth. Then later when you're trying to get to sleep your jaw decides to suddenly snap shut. I'm sure a lot of you suffer from it. I know you can get gumshields for sleep but I'm pretty certain that I don't do it in my sleep.
    Each day is made easier with a bit of humour.

    #2
    My friend my bottom lip is a warzone. I'm going to a Dental Hospital soon to have my teeth sorted because they have moved with everything else that's going on. The only bright side is that my tongue is now so dead I can't feel myself biting it. ๐Ÿ˜x
    Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong ๐Ÿค—๐Ÿ˜˜๐Ÿค—๐Ÿ˜xx

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      #3
      I also get my jaw clamping shut and my teeth catch my tongue, just when I am relaxing. Very annoying.
      Diagnosed 2nd Jan 2020
      Both arms/shoulders affected, left worse than right.
      Progressive Muscular Atrophy suspected

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        #4
        Yep! One side of my lip looks as if I've met Anthony Joshua ๐Ÿ˜

        I do bite my lip in bed, so the gumshield solves the night time biting. If my lip is particularly tender, I'll wear it for periods during the day for comfort but it isn't really practical...

        I am quite surprised by just how sharp my teeth are on wizen, thin lips - it really hurts ๐Ÿ˜ฒ And no, I don't want to have my teeth removed ๐Ÿ˜

        โ€‹Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
        Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

        โ€‹

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          #5
          Like others I do this whilst eating and during the night. I tried the gum shield but it made me gag. I did consider having my teeth removed but replacing them with a palette would still have problems as my jaw is shrinking. My solution is to use bonjela every evening.
          Iโ€™m going to do this even if it kills me!

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            #6
            I tend to bite the inside front part of my mouth desk eating slowly and carefully. What a painful nuisance. I havenโ€™t yet had night time jaw clamping. Oh the joys ๐Ÿคจ๐Ÿฅบ Lynne
            ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

            I'm staying positive and taking each day as it comes.

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              #7
              I too have problems of biting my tongue and chewy but what I hate is when my jaw just want to chatter it is annoying and makes talking even more difficult.

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                #8
                What is the explanation of this check biting? Muscles wasting meaning cheeks sag? Teeth not aligned?
                Diagnosed July 2020, ALS bulbar onset.

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                  #9
                  Pick any of the above and add more besides. Are we having fun yet? ๐Ÿ˜‰๐Ÿ˜x
                  Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong ๐Ÿค—๐Ÿ˜˜๐Ÿค—๐Ÿ˜xx

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                    #10
                    Heather R And muscle spasms but mostly, as you said, jaws don't align properly so teeth don't either, and our weak, thinning cheeks and lips get in the way - ouch...
                    โ€‹Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                    Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                    โ€‹

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