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    Mouth update

    It's not exactly a cake walk since the radiotherapy but no dribbling makes everything else worth it. I use far less tissues and learned to use my thumb to moisturiser the roof of my mouth. 😁x
    Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

    #2
    Thanks for the thumb tip.

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      #3
      Glad that you have a solution Mathew, another thing to to remember for the future. Thanks,Lynne x
      ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

      I'm staying positive and taking each day as it comes.

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        #4
        Great to hear you're happy with it.

        Is it only the roof of your mouth that feels very dry or tongue and cheeks too? xx
        ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
        Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

        ​

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          #5
          Roof most of the time, tounge most of the time and covered in gunk and cheeks occasionally. I've already decided that when my hands go so do I, therefore thumbs up for now. 😁x
          Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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            #6
            Thanks for the low down x
            ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
            Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

            ​

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              #7
              You know me πŸ˜‰πŸ˜xx
              Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

              Comment


                #8
                I should say that I am more than likely to not make it as far as my hands. But I'm not worried about going to hell because at least I be warm all eternity. 😁x
                Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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