I heard yesterday that the official government Covoid department doesn't consider me to be CEV. π’x
Announcement
Collapse
No announcement yet.
Cev
Collapse
X
-
Originally posted by matthew55 View PostI heard yesterday that the official government Covoid department doesn't consider me to be CEV. π’xJanette x
Comment
-
-
I'm not on a ventilator, but got a letter (from government?) saying I was CEV, and to let my GP know, and then got emails from supermarkets saying I was priority. If I am CEV, you definitely should be Matthew. xDiagnosed July 2020, ALS bulbar onset. PEG and ventilator (mainly at night), and pretty poor speech, but legs still about functioning!
Comment
-
-
CEV definition has change quite a few times since last year, if you remember at the start , mnd was on the list for discussion, but was never actually acknowledged, but MS was included, big campaign led by MNDA to get on the list, so it was agreed we could ask to be considered CEV, which we all did,. When they brought out the NHS track and trace app, MND was included on the list, on the same line as MS, then when the 2nd wave started the list was redone and basically only cancer was included, MND & MS was removed.
so anybody who had a diagnosis after the track and Trace app were deemed as CEV, but after the 2nd wave werenβt ,
Those who have been diagnosed since the summer can apply through the govt website or their GP, itβs not automatic.
Anyway, I have some good news I eventually applied for PIP in September and after 6 months of waiting , ive been awarded the full monty, and backdated to September ,
sAs long as thereβs golf and beer Iβm happy
-
👍 3
Comment
-
-
Originally posted by matthew55 View PostJust heard that someone is being sent round to give me a vacation.
βDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Significant bulbar impairment - No functional limbs - No speech - Feeding tube - Overnight NIV - Eye gaze user.
β
Comment
-
Comment