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And I'm off and running

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    And I'm off and running

    For the very first time I am having a pump feed and I have to say that once you have seen the video it's easy. 😁x
    Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

    #2
    I hope we get the same as you.

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      #3
      Woohoo!! Which feed were you given?

      ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
      Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

      ​

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        #4
        2 Cal 1000 ml I have asked if I can get a dairy free version. 😁x
        Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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          #5
          Do you plan to have the full 1000ml today?

          Ruth won't have much to teach you on Monday!


          ​​​​​​​
          ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
          Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

          ​

          Comment


            #6
            Yep the whole bottle! I'm experimenting with rates. I'm currently at 350 with no ill affects. 😁😍xx
            Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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              #7
              350ml/h?? Stomach of steel...
              ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
              Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

              ​

              Comment


                #8
                Er 400 now πŸ˜‰πŸ˜x
                Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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                  #9
                  Originally posted by matthew55 View Post
                  Yep the whole bottle! I'm experimenting with rates. I'm currently at 350 with no ill affects. 😁😍xx
                  Bloody hell Matthew, you don't half push the limits. Did you see the post on my tube feeding thread from David R where the nurse had told him that 190ml/hour was a maximum. Best of luck. I hope tomorrow's news doesn't include a story about a man from Leigh whose stomach exploded. Might make a good limerick. 🀞
                  Each day is made easier with a bit of humour.

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                    #10
                    400ml/h, I'd be 🀒

                    I once had mine at 500ml/h for 30mins after it was programmed incorrectly (in the hospice, not at home) I wondered why I felt so ill...

                    What's the hurry in getting 2000cals into you?
                    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                    Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                    ​

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                      #11
                      Don't forget I am 6'1" and the sort of build that makes people think twice about confronting me. Plus it's the biggest meal I have in a long long time. 😁x
                      Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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                        #12
                        Just finished it and I feel good which is lucky because I may not in a few hours. Tottenham play Made Up Man City. πŸ˜‚x
                        Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

                        Comment


                          #13
                          I half expected that horror show but all I can say is....I get knocked down but I get back up again, you ain't never going to keep me down. 😁x
                          Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

                          Comment


                            #14
                            So how do you feel today? A good feed and you might have had a good night or been up with stomach ache?
                            😊

                            Comment


                              #15
                              No stomach ache and flem extraction at 02:30am Other than that a normal, for me, night. 😁x
                              Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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