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    Pumps rule

    Okay it's still early days but already I can only recommend getting a pump feed. You can do it like me quickly or take your time and plenty of breaks of up to 90 minutes. It's so easy to set up and use and don't forget your getting 1000ml of high calorie feed. Feels good not to be dieting doesn't it? πŸ˜πŸ‘x
    Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

    #2
    We've been telling you that for ages πŸ˜‰πŸ˜Š Glad it's working out well for you.

    And peeps, you can have breaks of whatever duration you fancy.

    Matthew, you can always hook up the bottle, programme the pump to give say 400ml, have that, disconnect giving set then go back to it whenever and reconnect giving set, programme say 200ml for your next feed etc. until you have the 1000ml - that way there's no 90min pause to limit you.

    For those who are given the Nutricia Flocare Infinity pump, you don't need to break up the feeds into chunks if taking a break, the pump can be stopped and turned off at any time mid-programme and when you reconnect, just turn it on, press start, and it picks up where it left off.

    Flushing with water is part and parcel of tube feeding.
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
    Significant bulbar impairment - No functional limbs - No speech - Feeding tube - Overnight NIV - Eye gaze user
    .
    ​

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      #3
      What can I say I'm a born again Pegger. 😁x
      Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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        #4
        Gonna find out more tomorrow. Exciting stuff. Going to see a dietician and then hopefully we will get the gear and grub. Not sure when but that's the plan ☺
        when i can think of something profound i will update this.

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