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Hypnic jerks anyone?

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    Hypnic jerks anyone?

    Hypnic jerks are involuntary contractions of the muscles when you're falling asleep. Usually the legs and trunk. They're very common.

    I've suffered from hypnic jerks most of my life, but in the past I'd just get one occasionally before going to sleep. Now some nights I get a lot one after the other about every 30 seconds. Does anyone else have these?
    Each day is made easier with a bit of humour.

    #2
    Believe it or not I had them all my life, it told me I was close to sleep. Since the arrival nothing. I wish I had terminal cancer. 😁x
    Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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      #3
      I can understand that but then this forum would miss out on getting to know and love you 😍

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        #4
        Thanks my friend. What time we have left I cherish with you. 😁x
        Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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          #5
          You two, get a room
          Diagnosed 2nd Jan 2020
          Both arms/shoulders affected, left worse than right.
          Progressive Muscular Atrophy suspected

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            #6
            Originally posted by Beemer View Post
            You two, get a room
            🀣🀣🀣

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              #7
              Sure but separate beds. 😁x
              Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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                #8
                matthew55 Any port in a storm, surely 🀫 (yeah, I know - don't call you Shirley...)
                ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                ​

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                  #9
                  It's too late for feeling guilty about anything. 😁x
                  Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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                    #10
                    Originally posted by GaryM View Post
                    Now some nights I get a lot one after the other about every 30 seconds.
                    In the legs or trunk, Gary?

                    I get movement in my legs soon after getting into bed. In my case, it's Periodic Limb Movement Disorder (PLMD) and can continue for hours, which I find very debilitating. I take medication nightly for it, which stops my legs from jerking involuntarily. PLMD is related to Restless Legs Syndrome, both of which are neurological in nature.

                    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                    Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                    ​

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                      #11
                      Ellie well that’s a first, never been called a port before β›΅οΈπŸ˜‰

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                        #12
                        Originally posted by Ellie View Post
                        In the legs or trunk, Gary?

                        I get movement in my legs soon after getting into bed. In my case, it's Periodic Limb Movement Disorder (PLMD) and can continue for hours, which I find very debilitating. I take medication nightly for it, which stops my legs from jerking involuntarily. PLMD is related to Restless Legs Syndrome, both of which are neurological in nature.
                        It feels like legs and trunk. I'll do some research. Thanks.
                        Each day is made easier with a bit of humour.

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                          #13
                          GaryM I suffered from restless leg syndrome that would keep me awake for hours when I tried to fall asleep until I was prescribed gabapentin. Cured it completely. I would recommend speaking to your GP about your symptoms.

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                            #14
                            Originally posted by DJW View Post
                            GaryM I suffered from restless leg syndrome that would keep me awake for hours when I tried to fall asleep until I was prescribed gabapentin. Cured it completely. I would recommend speaking to your GP about your symptoms.
                            Thanks for the suggestion, Dennis. I hadn't thought of mentioning it as it seemed fairly trivial compared to other symptoms I'm struggling with. I'll read up on it and ask about it next time I speak to him. It's almost like someone stimulating the sole of my foot and the reflex action that follows.
                            Each day is made easier with a bit of humour.

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                              #15
                              My consultant has mentioned gabapentin a couple of times, but have declined, no reason, just personal choice , leg stretches and glass of Baileys before bed seem to ease it for me
                              As long as there’s golf and beer I’m happy

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