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Living with pain

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    DJW
    Forum Member

  • DJW
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    TinyDancer
    Forum Member
    TinyDancer morphine = concrete stools, for us suffers pooping is already an ordeal.

    matthew55
    Forum Member
    matthew55 read this book. IMG_20210221_095939872.jpg

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  • TinyDancer
    Forum Member

  • TinyDancer
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    I'm glad your GP is trying but sounds like he needs to go further. Is there an MND nurse he can link up with? It just seems to me your GP needs to be getting specialist advise from the MND team about how to make you comfortable. This is very tough I know and probably hard to be assertive when you're in so much pain. I appreciate you can't pick up the phone too and have to email etc but please don't give up. Fight for stronger pain relief x

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  • matthew55
    Forum Member

  • matthew55
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    My district nurses are as much good as chocolate teapot and my doctors practice don't seem to understand MND, well my personal one is trying but he's hardly ever there. It never rains because it pours.😁x

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  • TinyDancer
    Forum Member

  • TinyDancer
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    Sorry if this is a daft response but can't you have liquid morphine? Do you have district nurses coming in or anything? My mum won't accept any contact from medics but the GP wants to set up district nurses through GoldLine (not sure if you have that where you are) They talk about liquid drugs like loranzepam and morphine for pain and breathlessness. I'm sorry you're going through this and I feel you shouldn't have to be in this pain and I really hope you can have something stronger x

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  • matthew55
    Forum Member

  • matthew55
    started a topic Living with pain

    Living with pain

    Until you feel pain for every waking hour you cannot understand me. My neck pain has spread to my upper back and shoulders. I can't move my arms in certain ways and I can't turn my head. Oh and now I get hot, sharp flashes of pain. I have tried neck brace, hot and cold treatments and various drugs to no avail. I'm praying that the patches I have coming later today help. If I can't find solace I will take my pills. That's not a threat it's a promise. 😢x
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