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Living with pain

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  • Heather R
    replied
    Sorry you're having such a rough time, matthew, thinking of you, sending love x

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  • matthew55
    replied
    Hope for the best but prepare for the worst. It's seen me this far. 😁x

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  • House44
    replied
    Originally posted by matthew55 View Post
    Until you feel pain for every waking hour you cannot understand me. My neck pain has spread to my upper back and shoulders. I can't move my arms in certain ways and I can't turn my head. Oh and now I get hot, sharp flashes of pain. I have tried neck brace, hot and cold treatments and various drugs to no avail. I'm praying that the patches I have coming later today help. If I can't find solace I will take my pills. That's not a threat it's a promise. 😢x
    I think I need to get some of them pills for a rainy day too.

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  • matthew55
    replied
    Well the post is open. 😁x

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  • Ellie
    replied
    If they don't work, ask for morphine patches or a referral to the hospice. (I feel like your mother 😆)

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  • matthew55
    replied
    I can't swallow pills and my patches have Methyl Salicylate and Levomenthol.😁x

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  • Ellie
    replied
    Liquid morphine is quite short acting - are those patches you're waiting for morphine too? Hope they are, given that you probably can't take continuous release tabs?

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  • slp
    replied
    Matthew I take Oramorph every day before bed. It relaxes my legs and I sleep well with it. I know that it contributes towards the old constipation but I don't notice any difference to be honest. Go for it x Stay safe x Sarah xx

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  • matthew55
    replied
    Didn't I say that my Doctor is a superstar? He's agreed to let me try liquid morphine! 😁👍x

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  • Mary C
    replied
    Hi Matthew,is it worth ringing the local hospice and ask if you can self refer.?The hospice/palliative care team really understand pain control as well as about your quality of life that you express and not that anyone assumes.My local hospice/palliative team have been great from day one of diagnosis.The lead nurse spent a great deal of time going through my wishes and discussing my concerns re Pain control .She took the lead from me about what I needed to know at that time.Therafter a member of the team rings me every few weeks to check how I feel and importantly how my husband is coping.During lockdown this support continues and the hospice OT has been to visit when needed.You are going through so much.The hospice advised me to always contact them first as they know my wish is to keep out of hospital and remain at home.Also they are experienced in supporting us people who live with a life limiting illness.Best wishes.Mary

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  • matthew55
    replied
    I get the local Hospice magazine and I would be happy to get referred to it but you are the first person to mention it to me. Thanks a million 😟😍👏👍x

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  • Ellie
    replied
    Mate, do you know who understands pain? Hospices. Now, don't dismiss the idea immediately as it not being for you - if your pain is that bad, it must be worth changing the goalposts for.

    I checked your local hospice and they need a referral from any of your Consultants, senior Doctors, GP or district nurse (I know you said she's useless, but she might be happy to move you on)

    Think about it x

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  • DJW
    replied
    Sex drugs and rock n roll,
    Pain, shame and to be named,
    Motor neuron disease,
    Is to no one to be pleased,
    So read it to impede it,
    Or pop it to stop it,
    With pain comes no gain.
    For you a poem,
    To know you are not alone.

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  • matthew55
    replied
    Actually I can juggle with constipation producing drugs with a brilliant constipation relief drugs. 😁x

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  • matthew55
    replied
    No thanks

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