Nice thing is that Joshua said he is going to visit me to talk MND πx
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Originally posted by matthew55 View PostMine came out of the blue and that was a week ago but I gather a report was made of me and it sounded like I'm close to dying aparantly πxEach day is made easier with a bit of humour.
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Originally posted by matthew55 View PostNice thing is that Joshua said he is going to visit me to talk MND πxβDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Significant bulbar impairment - No functional limbs - No speech - Feeding tube - Overnight NIV - Eye gaze user.
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I can't make head nor tail of it all. I get headaches briefly when I wake up and something from the ear blood was a bit off. I count each new day as a blessing whatever the medical profession says about me πππxBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxx
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Originally posted by matthew55 View PostI gather a report was made of me and it sounded like I'm close to dying aparantly
It'll be good for you to see what your lung function test results are and how you get on with NIV. That said, numbers are just numbers - my lung function has been on the floor for years and my neuro doesn't know how I'm still alive, so don't believe all you hear π
βDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Significant bulbar impairment - No functional limbs - No speech - Feeding tube - Overnight NIV - Eye gaze user.
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I suppose I should say that as a boy I came third in the South East England Chess Tournament. I won a signed Bobby Fischer book and was officially commended for my use of my knights. It was a long time ago so it ain't over until the uncommonly large woman sings. ππBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxx
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Originally posted by matthew55 View PostI suppose I should say that as a boy I came third in the South East England Chess Tournament. I won a signed Bobby Fischer book and was officially commended for my use of my knights. It was a long time ago so it ain't over until the uncommonly large woman sings. ππ
I taught myself from a book ( might have come from Korea π€).
I joined the schools chess club but only because it was winter and I didnβt fancy being outside at lunch time. Donβt think I ever won a game.
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These days I only play online as my only visit to a local chess club was a disappointment. I've never really bothered with the squares numbers and certainly not studied endless past games, actually I have used the same exact opening all my life. I think it's a Fischer. πxBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxx
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Originally posted by matthew55 View PostThese days I only play online as my only visit to a local chess club was a disappointment. I've never really bothered with the squares numbers and certainly not studied endless past games, actually I have used the same exact opening all my life. I think it's a Fischer. πx
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