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    #16
    Nice thing is that Joshua said he is going to visit me to talk MND πŸ‘x
    Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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      #17
      Originally posted by matthew55 View Post
      Mine came out of the blue and that was a week ago but I gather a report was made of me and it sounded like I'm close to dying aparantly 😁x
      Maybe as a result of your last consultation? I don't believe you're close to dying, there's too much life in you. Anyway, who would provide us with new topics if not you? πŸ˜‰
      Each day is made easier with a bit of humour.

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        #18
        I agree Gary plus he’s still whopping my ass on the chessboard

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          #19
          Originally posted by matthew55 View Post
          Nice thing is that Joshua said he is going to visit me to talk MND πŸ‘x
          Pity he won't bring the NIV & Cough Assist with him instead of making you spend a few nights in hospital 😟
          ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
          Significant bulbar impairment - No functional limbs - No speech - Feeding tube - Overnight NIV - Eye gaze user
          .
          ​

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            #20
            I can't make head nor tail of it all. I get headaches briefly when I wake up and something from the ear blood was a bit off. I count each new day as a blessing whatever the medical profession says about me πŸ‘πŸ˜πŸ˜x
            Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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              #21
              Oh and I wasn't I kind not to take your queen? πŸ˜‚x
              Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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                #22
                Originally posted by matthew55 View Post
                I gather a report was made of me and it sounded like I'm close to dying aparantly
                Drama Queen πŸ‘Έ 🀩

                It'll be good for you to see what your lung function test results are and how you get on with NIV. That said, numbers are just numbers - my lung function has been on the floor for years and my neuro doesn't know how I'm still alive, so don't believe all you hear 😘

                ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                Significant bulbar impairment - No functional limbs - No speech - Feeding tube - Overnight NIV - Eye gaze user
                .
                ​

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                  #23
                  I for one am damn glad you are 😍x
                  Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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                    #24
                    Originally posted by matthew55 View Post
                    Oh and I wasn't I kind not to take your queen? πŸ˜‚x
                    Showed all my 50 years absence.

                    Still there’s always next time. Might wait until you are all drugged up tho 😁

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                      #25
                      I suppose I should say that as a boy I came third in the South East England Chess Tournament. I won a signed Bobby Fischer book and was officially commended for my use of my knights. It was a long time ago so it ain't over until the uncommonly large woman sings. 😊😁
                      Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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                        #26
                        Originally posted by matthew55 View Post
                        I suppose I should say that as a boy I came third in the South East England Chess Tournament. I won a signed Bobby Fischer book and was officially commended for my use of my knights. It was a long time ago so it ain't over until the uncommonly large woman sings. 😊😁
                        Ah that explains it.
                        I taught myself from a book ( might have come from Korea πŸ€”).
                        I joined the schools chess club but only because it was winter and I didn’t fancy being outside at lunch time. Don’t think I ever won a game.

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                          #27
                          These days I only play online as my only visit to a local chess club was a disappointment. I've never really bothered with the squares numbers and certainly not studied endless past games, actually I have used the same exact opening all my life. I think it's a Fischer. 😁x
                          Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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                            #28
                            Originally posted by matthew55 View Post
                            These days I only play online as my only visit to a local chess club was a disappointment. I've never really bothered with the squares numbers and certainly not studied endless past games, actually I have used the same exact opening all my life. I think it's a Fischer. 😁x
                            Would love to chat more but I’m off to study some Fischer games 😁

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                              #29
                              😴
                              when i can think of something profound i will update this.

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                                #30
                                I think I can safely say I am indeed in for a stay at Hospital as an email I received earlier from them told me that I would be taken to my ward. Subtle don't you think? 😁x
                                Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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