It keeps getting better

[denise]

How can it be your fault? You went to them for help. What a cheek. Xxx

[matthew55]

Fat chance. Just had a 12 year old doctor in training shoes telling me it's really my fault 😠😊😊

[denise]

Morning Matthew
I'm sorry you are having such a bad time. Hopefully your complaint will make it better for someone else.
love and hugs Denise xxx

[matthew55]

No one here knows about MND and I want to make an official complaint

[matthew55]

It's pathetic. I'm in a four bed ward with one other chap. He is 79 and partially deaf. He came in with breathing problems. He is on NIV for the first time just like me and his alarm has just gone off for the fourth time tonight. I have given up on mine because I take three breaths and my throat closes up. Ellie is spot on as usual and I will show her post to the doctor in the morning which is a very long way away. 😠

[Jo jo]

Does everyone have to go into hospital when they first have a NIV? My partner had an overnight breathing test and they are contacting us on Monday as they said it wasn’t very good. He is having lorazepam and morphine at night to help with his breathing and think they may be looking at giving him NIV very soon. Hope Mathew finds it works for him ❤️❤️❤️

[Bowler]

Matthew, really hope you get sorted tonight. Take care mate.

[Ellie]

Janette, it should really be in PSV mode, it's all to do with how the air (breath) is delivered and how much work you're left to do.

[Nettie]

Ellie just looking at mine and my settings are not much different to Matthews and mine is in the PCV mode also 🤷♀️ X

[GaryM]

I hope it's better than last night then.

[matthew55]

I'm still in and trying tonight

[GaryM]

Have they let you out Matthew? Is the Nippy any use? Did they try different settings? If you're tired don't bother replying.

[matthew55]

IMG_20210227_214324.jpg here you are.

[slp]

I am sorry things are pants Matthew. Hopefully you will be home soon x
I don't have a mask so I can't help but stay positive x

[matthew55]

I will later 😁x