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    Most useful item

    I bought one of these folding tables well before my illness, but it's turned out to be incredibly useful. I have my meals off it, use my laptop on it. It's that light I can move it around with my feet while sat down. Louise was horrified when I bought it and I had to hide it away if we had visitors. What items do you find invaluable?
    s-l400.jpg
    Each day is made easier with a bit of humour.

    #2
    I got a memory foam neck support that is perfect for placing on the arm of my sofa when lying down on it, and taking the weight of my head off my neck muscles. Incalculable. ๐Ÿ‘๐Ÿ˜x
    Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong ๐Ÿค—๐Ÿ˜˜๐Ÿค—๐Ÿ˜xx

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      #3
      Love my tray, allows me to have a drink when sat in the living room
      You do not have permission to view this gallery.
      This gallery has 1 photos.

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        #4
        thumbnail_Resized.jpgGot to be our Gerberit loo
        If the stupid forum would let me post a picture I would too.
        Last edited by Beemer; 26 February 2021, 10:56. Reason: Photo added, thanks Eli
        Diagnosed 2nd Jan 2020
        Both arms/shoulders affected, left worse than right.
        Progressive Muscular Atrophy suspected

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          #5
          Without a shadow of a doubt my most useful item is my beloved Tobii 4C eye tracker. It cost me ยฃ129 and allows me live (and do the weekly Tesco shop ๐Ÿ˜)

          Tobii 4C.jpg

          โ€‹Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
          Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

          โ€‹

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            #6
            If I can join in. Annโ€™s was her red leather riser reclining chair. She loved the comfort. Canโ€™t post a pic due to file size restrictions ๐Ÿ˜ก

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              #7
              This forum. Without it I'd be home alone ๐Ÿ˜Š

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                #8
                Ellie for 129 quid thats amazing considering how much you use it......brilliant
                Husband Albert diagnosed PMA Feb 21

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                  #9
                  Gary have you got a riser reclining chair? I am being considered for one, and I was wondering what I could put the computer on. The Parker Knoll I sit on doesn't allow table legs to go under. Whilst I can still walk a bit, though breathless and slow, I was thinking today how wonderful are the elastic laces for my walking boots. Also, just appreciating the apple peeler/corer and slicer I have just bought, as I can't find frozen apple to make my favourite stewed blackberry and apple !
                  Diagnosed July 2020, ALS bulbar onset.

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                    #10
                    Originally posted by Heather R View Post
                    Gary have you got a riser reclining chair? I am being considered for one, and I was wondering what I could put the computer on. The Parker Knoll I sit on doesn't allow table legs to go under. Whilst I can still walk a bit, though breathless and slow, I was thinking today how wonderful are the elastic laces for my walking boots. Also, just appreciating the apple peeler/corer and slicer I have just bought, as I can't find frozen apple to make my favourite stewed blackberry and apple !
                    Not yet, Heather. I might need one soon, but when the OT came the other day she didn't suggest one and I didn't ask about one. They seem to wait until you really need something before providing it. I suppose it maximises use of resources. We could buy one, but then Louise is stuck with a non-matching chair in the lounge. Mind you they are providing a wheeled commode, a memory foam cushion and a Neater Drinker cup to try. I thought elastic laces were brilliant for about a year. Now Louise puts my shoes on, laces are easier.
                    Each day is made easier with a bit of humour.

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                      #11
                      Originally posted by Heather R View Post
                      Gary have you got a riser reclining chair? I am being considered for one, and I was wondering what I could put the computer on. The Parker Knoll I sit on doesn't allow table legs to go under. Whilst I can still walk a bit, though breathless and slow, I was thinking today how wonderful are the elastic laces for my walking boots. Also, just appreciating the apple peeler/corer and slicer I have just bought, as I can't find frozen apple to make my favourite stewed blackberry and apple !
                      Heather we got provided with one similar to this. I canโ€™t remember if it was OT or ACT. It was wide enough to fit over the riser recliner and height adjustable. Have a word with your OT. Sorry Heather file size is stopping me adding photo again.
                      NRS Adjustable Tilting Over Bed And Over Chair Table


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                        #12
                        Talking of riser recliners. I still have Annโ€™s. It is Red leather,. As with most chairs it was made to measure and Ann was petite. If anyone is interested in having it for nowt please PM me. I will say that I moved it at the start of lockdown and unfortunately because itโ€™s very heavy and I did it on my own some bearings have come out. The company have agreed to take it and completely fix it under the guarantee. Unfortunately they will not collect until after lockdown.

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                          #13
                          Best thing I got recently was slip on slippers. ๐Ÿ˜๐Ÿ‘x
                          Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong ๐Ÿค—๐Ÿ˜˜๐Ÿค—๐Ÿ˜xx

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                            #14
                            Got to be my mobility scooter, it's a lighter-weight pavement one, but I take it all sorts of inappropriate off road places. Poor wee thing๐Ÿ˜…

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                              #15
                              Originally posted by Ellie View Post
                              Without a shadow of a doubt my most useful item is my beloved Tobii 4C eye tracker. It cost me ยฃ129 and allows me live (and do the weekly Tesco shop ๐Ÿ˜)

                              Tobii 4C.jpg
                              Ellie I am with you. My eye gaze is my life line. I can talk to everyone do all the shopping ,run the household , and organise my life and my family. I would be lost without it. x

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