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    #16
    This is weird on notifications I clicked on to see what everyone has added to the site and was told to contact administration because I was not able to access the site 😢😢😦😭
    but if I just do it manually I can 🤤
    when i can think of something profound i will update this.

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      #17
      A rise and recline chair was my late Husband's life line, he could sit raised so was more comfortable with his chest. We had bought a small table , but it became too small for all his Radio Am bits and pieces, so they brought him another. Both items were collected after he passed away.

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        #18
        My profile bed

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          #19
          Welcome to the Forum, Peggy!

          Love Ellie.
          ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
          Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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            #20
            Beemer The loo looks very sleek - the fact that the seat is level is great.

            Are all of its workings hidden in the boxing?
            ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
            Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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              #21
              Originally posted by Ellie View Post
              Beemer The loo looks very sleek - the fact that the seat is level is great.

              Are all of its workings hidden in the boxing?
              Yes Ellie, there is a remote too. Only cost £4000 apparently
              Diagnosed 2nd Jan 2020
              Both arms/shoulders affected, left worse than right.
              Progressive Muscular Atrophy suspected

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                #22
                £4000 for a loo 🤤 bet it doesn't do the ironing 😔
                when i can think of something profound i will update this.

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                  #23
                  My bio bidet 1000 toilet.However having trouble finding a shower chair that’s fits over it for when and if I can’t transfer on to it.Had OT and reps out and still no suitable shower chair.The bidet system is brill and leaves me clean and dry after toilet use.

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                    #24
                    A remote on a loo? How far away can you get? 🤔x
                    Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong 🤗😘🤗😁xx

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                      #25
                      That made me laugh. I mean someone could flush you by mistake. 😄
                      when i can think of something profound i will update this.

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                        #26
                        Mine is my electric toilet seat which gets me to standing position and of course my recliner chair.

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                          #27
                          Ellie and SLP (please excuse me that I forget your name) where did you buy that eye gaze device and what will it connect to? £129 for that is well worth it. Thanks, Lynne x
                          ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

                          I'm staying positive and taking each day as it comes.

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                            #28
                            Hi Peggy, Lynne x
                            ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

                            I'm staying positive and taking each day as it comes.

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                              #29
                              Hi Lynne,

                              If you're struggling with using a tablet/laptop, your first port of call is the assistive technology people, who will assess your needs and should also provide you with appropriate gadgets. I was introduced to eye gaze this way, then researched how I could get better PC access for how I use a PC, and bought the eye tracker on Amazon (unfortunately it's no longer available)

                              Eye gaze systems enable you to use the internet, email, type & chat, listen to books & music, watch TV etc. as well as having environmental controls allowing for control of the TV, compatible sockets etc.

                              And, like everything, it's best to start the ball rolling on it sooner rather than later, the process can take a while.

                              Love Ellie.
                              ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                              Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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                                #30
                                Originally posted by Ellie View Post
                                Hi Lynne,

                                .........

                                And, like everything, it's best to start the ball rolling on it sooner rather than later, the process can take a while.

                                Love Ellie.
                                I've tried to get the SaLT to refer me but she won't until I can't use anything. If there's a break in my posts in a few weeks time it means I'm waiting for their help. 🙄
                                Each day is made easier with a bit of humour.

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