Announcement

Collapse
No announcement yet.

Finishing the story

Collapse
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

    Finishing the story

    I am seriously considering taking my own life as I have discovered that if you need help and no one understands you, the question becomes 'why should I continue living as an ignored person'? Would you?
    Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

    #2
    Matthew, hang on in there mate. I’ve messaged MNDA asking if they can help you in the situation you are in. You can boxxock me later

    Comment


      #3
      Good luck with that they don't like me much
      Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

      Comment


        #4
        Matthew your message box is full. Please delete some stuff so I can contact you

        Comment


          #5
          Hi Matthew

          I've just sent you a private message

          Best Wishes

          Rachel
          MND Connect Adviser
          MND Connect
          Contact us on 0808 802 6262 or at [email protected]

          Comment


            #6
            I have replied
            Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

            Comment


              #7
              Has anyone tried to to tell a hospital consultant that they have made an incorrect decision?
              Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

              Comment


                #8
                Hi Mathew we need you on this forum my friend. You make me laugh with your straight down the line approach. If I could I’d like to talk to u in private?

                Comment


                  #9
                  Talking is the last thing I want
                  Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

                  Comment


                    #10
                    Ok Mathew whenever your ready pal πŸ‘πŸ»

                    Comment


                      #11
                      Have you tried involving Patient Liaison (PALS)?

                      You could 'accept' things as they are now and go home, take it from there? xx
                      ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                      Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                      ​

                      Comment


                        #12
                        I am at home they were happy to get rid of me. I have a meeting with the incompetent consultant tomorrow pm
                        Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

                        Comment


                          #13
                          Try involving anyone on a Sunday
                          Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

                          Comment


                            #14
                            Matthew, I understand your thoughts of wanting to end it all. Under the circumstances I think it’s not surprising. I have also had those thoughts at times, but something has stopped me. I don’t think I’m brave enough to take that step. I hope you won’t be too brave either. Remember, you are more than MND. With love , Lizzie xx

                            Comment


                              #15
                              The thing that would stop me is recognising the carnage and grief I would leave behind. I couldn't do that to the people left behind. I am speaking from experience I still question myself whether I could have changed their decision and it haunts me. I wouldn't have the courage but I do understand because when I have bad spells I can understand why people have dark thoughts.

                              I am glad that you are home x Sarah xx

                              Comment

                              Working...
                              X