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Very bad hair day

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    Very bad hair day

    This is a general apology for everyone who felt the bite of my tongue today. As I should have realised it was much better than I thought it could be. Sorry again. 😍x
    Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong 🤗😘🤗😁xx

    #2
    Friends are friends through good and bad times. Good to have you back

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      #3
      You were traumatised, it's understandable x
      ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
      Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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        #4
        Glad you are ok Matthew.I read your many posts and It sounds like you really are frustrated with the experiences and pains you are going through.It’s as Ellie says “so understandable”.Hope tomorrow is a better day for you.Best wishes Mary

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          #5
          I second that 😘

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            #6
            Oh Lizzie, what a cute dog!!! Boy or girl? x
            ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
            Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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              #7
              Ellie, I hope you have less pain tonight. Thinking of you, and also of Matthew.
              My little dog is a girl, Sally. She is a trained therapy dog, but now I can’t take her to visit others, she’s all mine, and she is my constant companion. Sleep well. xx

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                #8
                Good to hear from you.... keep the witty straight down the line comments coming. They make me smile 😂😂👍🏻

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