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Whythenshaw

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    Whythenshaw

    Just to say the Hospital was horrified and embarrassed by what happened to me and have bent over backwards to fix things and make my return go right. I am looking forward to returning. 😁x

    #2
    Well that’s something. When are you going back. Asking so I know when to get the πŸͺ– ready 😁
    Thats my attempt at trying to lighten things up by the way.

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      #3
      Two weeks time 😁x

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        #4
        Oh that's great to hear!! You must be so relieved by the reception you got today x
        ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
        Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

        ​

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          #5
          I admit I really was crying 😁x

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            #6
            Good to hear that you finally got some recognition Matthew. At the very least you may be improving the treatment of future MND patients. Not that I've got a vested interest or anything. πŸ˜‰
            Each day is made easier with a bit of humour.

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              #7
              One thing brought home the madness that is Covoid.
              My only companion in my ward (side room) was a lovely chap of 79 years and partially deaf. He was getting NIV for the first time like me and when they do it they wear full PPE including a filtered mask that makes their voice muffled. This poor chap couldn't hear them so he just said yes to everything. Can you see what I'm getting at? 😠😁x

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