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Mostly Not Dumb

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    Mostly Not Dumb

    Considering Professor Hawkins I have found it disturbing how many people who after talking to me express suprise that I am very intelligent. Maybe it's my face? πŸ€”πŸ˜x
    Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

    #2
    Yeah and then there’s the bit when you suddenly become almost deaf the moment you have to start using a wheelchair. HELLO I’M JJST GOING TO CHANGE YOUR DRESSING. πŸ™„

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      #3
      I've found that the older I get everyone thinks I'm deaf and stupid. Who cares! It's what I think that matters πŸ˜›

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        #4
        Well that's exactly what I thought you'd say.
        Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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          #5
          No, it's not your face Matthew, it comes with the territory.

          I refuse point blankly to engage with anyone who doesn't engage directly with me and have bluntly asked others as to why they're talking to me as if I were a 4yo - I take no prisoners. I never get used to it either....
          ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
          Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

          ​

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            #6
            I would so love to see you in action! πŸ˜πŸ˜‚πŸ˜x
            Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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              #7
              Like Matthew, I'd love to see you in action too, Ellie.

              Last time we were at the airport I went through security in my powerchair. The security person looked at Stuart and said... can she walk at all ?

              I won't share our reaction ! When we complained to special assistance they said it was typical and they were working on it.

              Love Debbie x

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                #8
                When I first went out in my wheelchair one neighbour spoke to my husband and patted me on the head.He looked embarrassed when I laughed.At that time I was Suprised and couldn’t think what to say.It hasn’t happened since then .Best wishes Mary

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                  #9
                  There must be a reason why this happens. Do we just associate wheelchairs with pushchairs or prams. It's very odd. πŸ€”

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                    #10
                    Look looking after someone with MND does not mean you understand what it's like to live with it. Please understand.
                    Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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                      #11
                      Matthew there are more than just mnd people in wheelchairs. I wasn't trying to pretend I have mnd. That's not what I was referring to. Just why people treat wheelchair users that way.
                      YES I am a carer and I am allowed to present my thoughts just as much as anyone else. As a carer I find your comments offensive and I think others will feel the same.

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                        #12
                        I'm sorry you feel that way. After all I have tried to do for you. Please leave me alone from here on in.
                        Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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                          #13
                          What are you talking about

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                            #14
                            Which bit?
                            Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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                              #15
                              Okay so you saying I have been offensive and most of your posts are about you and your issues. When they relate to your caring no worries but the other ones I find offensive. I may feel differently tomorrow because I have MND.
                              Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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