It always saddens me when people fall out on this forum and there have been many instances in the past. Often the written words are misinterpreted or typed in haste and this would probably not occur in a face to face situation. Life with MND is challenging as is caring for someone with the disease so please take a deep breath and make up.
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Iβm going to do this even if it kills me! -
My life, such as it is, is the written word. Think camels.Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxxComment
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As in you always have the hump? πComment
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More barley, oats and wheat. ππxBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxxComment
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One hump or twoOriginally posted by matthew55 View Post
Iβm going to do this even if it kills me!Comment
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Who can refuse a hump or two? πComment
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You ought to know by now that our Matthew is a non-conformist πOriginally posted by Barry52 View Post
Last edited by Ellie; 23 November 2021, 13:11.βDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
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And I had you down as a prude... π πOriginally posted by DJW View PostβDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
βComment
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I'm guessing that no one reads the good book anymore? It wasn't humps nor needles but the final piece of straw that broke the poor animals back. ππxBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxxComment
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matthew55 Hereβs a playlist for you after smoking your meds Classic Road Trip Songs by Spotify https://open.spotify.com/playlist/37...ive-share-menuLast edited by DJW; 6 March 2021, 16:24.Comment
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More cookies and coffee for Matt, Denise?
https://www.youtube.com/watch?v=dMdPyyGDAXg
... or should we send in Elliebo??
https://www.youtube.com/watch?v=lbM1GGzR0asCopyright GrahamComment
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Dear Graham
you always come up with the best ideas. Spanish inquisition might also be required.
Many thanks
Denise xwhen i can think of something profound i will update this.Comment
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Copyright GrahamComment
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Oh Graham you have found the perfect solution.
best hugs Denise xxxx
when i can think of something profound i will update this.Comment
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