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    #16
    It always saddens me when people fall out on this forum and there have been many instances in the past. Often the written words are misinterpreted or typed in haste and this would probably not occur in a face to face situation. Life with MND is challenging as is caring for someone with the disease so please take a deep breath and make up.
    I’m going to do this even if it kills me!

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      #17
      My life, such as it is, is the written word. Think camels.
      Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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        #18
        As in you always have the hump? πŸ˜‰

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          #19
          More barley, oats and wheat. πŸ˜‰πŸ˜x
          Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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            #20
            Originally posted by matthew55 View Post
            My life, such as it is, is the written word. Think camels.
            One hump or two
            I’m going to do this even if it kills me!

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              #21
              Who can refuse a hump or two? 😘

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                #22
                Originally posted by Barry52 View Post
                One hump or two
                You ought to know by now that our Matthew is a non-conformist πŸ˜„



                Last edited by Ellie; 23 November 2021, 13:11.
                ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                ​

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                  #23
                  Originally posted by DJW View Post
                  Who can refuse a hump or two? 😘
                  And I had you down as a prude... πŸ˜…πŸ˜…
                  ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                  Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                  ​

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                    #24
                    Ellie you are hilarious. 🀣 😘

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                      #25
                      I'm guessing that no one reads the good book anymore? It wasn't humps nor needles but the final piece of straw that broke the poor animals back. πŸ˜‰πŸ˜x
                      Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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                        #26
                        matthew55 Here’s a playlist for you after smoking your meds Classic Road Trip Songs by Spotify https://open.spotify.com/playlist/37...ive-share-menu
                        Last edited by DJW; 6 March 2021, 16:24.

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                          #27
                          More cookies and coffee for Matt, Denise?

                          https://www.youtube.com/watch?v=dMdPyyGDAXg

                          ... or should we send in Elliebo??

                          https://www.youtube.com/watch?v=lbM1GGzR0as
                          Copyright Graham

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                            #28
                            Dear Graham
                            you always come up with the best ideas. Spanish inquisition might also be required.
                            Many thanks
                            Denise x
                            when i can think of something profound i will update this.

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                              #29
                              There are always other options...

                              https://www.youtube.com/watch?v=OpEQNEHKdXg

                              Hugs xxxxxx
                              Copyright Graham

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                                #30
                                Oh Graham you have found the perfect solution.
                                best hugs Denise xxxx
                                when i can think of something profound i will update this.

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