I have stirred deep emotions but let me be clear. The difference between a cared for and the carer is simple : One can walk away and one can't. I leave it to you to work it out. Elvis has left the building. πx
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Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxx -
Sorry to hear that mate.βDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Significant bulbar impairment - No functional limbs - No speech - Feeding tube - Overnight NIV - Eye gaze user.
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You missed my intent mate. I was attempting to provoke a reaction is all. Still a free world isn't it? ππxBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxxComment
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Well that depends on the carer surely? π€πxBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxxComment
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I have just had one of those tests from the clinical psychologist to see how I am functioning mentally. The test for empathy and ability to see other's point of view makes me laugh in its simplicity, maybe it's excellent at measuring this, I really don't know. But I guess we with mnd have to be aware that this is one thing that may affect us? and for carers to be aware of too? xxDiagnosed July 2020, ALS bulbar onset. PEG and ventilator (mainly at night), and pretty poor speech, but legs still about functioning!Comment
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I honestly didn't mean family members or friends. I'm referring to professional carers. Apologies to anyone who thought otherwise. I think I need one of those tests don't you? ππxBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxxComment
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It will in this house DJW, and that is what upsets me the most.Originally posted by DJW View PostDiagnosed 2nd Jan 2020
Both arms/shoulders affected, left worse than right.
Progressive Muscular Atrophy suspectedComment
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