Can anyone tell me what actually happened when you had your first fall? Was it a sudden loss of legs or sudden loss of balance? Or something completely different naturally. Thanks and Stay Safe and Happy. πππx
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Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxx -
Balance for me as I caught my foot on a kerb and down I went. I donβt think you can draw any conclusion from this as it will be different for everyone. Have you fallen recently?Iβm going to do this even if it kills me! -
Not quite, I have been able to hold onto something so far. ππxBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxxComment
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Havenβt totally fallen , but knees just give way when standing up or if bending over, sometimes bend over further than I was expecting, my strategy is expect it and be prepared , so for me itβs muscle and balance issues , such fun (even more fun when Iβve had a couple of pints)As long as thereβs golf and beer Iβm happyComment
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Theyβve all seemed different when Iβve fallen, but I think the first time I just fell forward and face planted the floor π€¦πΌββοΈπ₯΄Janette xComment
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Forrest would know the answer πππ€xBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxxComment
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Janette that's what's happened to Stephen. No time to even put his hands in front of his face.when i can think of something profound i will update this.Comment
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Balance for me, I tripped on a fascia board in my garden in the rain realised I was falling put my arm out Iβm broke it. Ouch it hurt bad. What made it worse was my dog what is out there with me and started licking my face while I was downππ I couldnβt stop himComment
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My first fall was when I tripped on a kerb and fell face down, bearing in mind my arms are useless, I got taken to hospital with a gash in my fore head.
My second fall was backwards. Walking down a path, I bent my legs slightly and they just give way. Luckily I directed myself backwards onto some grass and my head hit the grass instead of the path, so no injury.Diagnosed 2nd Jan 2020
Both arms/shoulders affected, left worse than right.
Progressive Muscular Atrophy suspectedComment
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Gosh it all sounds like so much fun. I can't wait to try it! ππxBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxxComment
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It all happens so quick I did it while holding my baby granddaughter π€¦πΌββοΈ She doesnβt come anywhere near me now π₯Ί xOriginally posted by denise View PostJanette xComment
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We are learning though I just take shuffling steps now with Rollator xOriginally posted by matthew55 View PostJanette xComment
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Balance - then the 'move' signal to say 'put your arms out to break the fall, Crazy Lady', doesn't work and a face plant/back of the head plant ensues.βDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
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