Spasms

[Nettie]

Lot of spasms today and a shooting pain in my arm 🥺 x

[matthew55]

Snap! Mine are on my face, neck and stomach. Happy Days really are Here Again! 😁😍x

[Nettie]

Mine seems to be my whole body like when you have a stretch, body goes all stiff for a few secs 🤦🏼♀️ Oh the joys 😬 x

[Mary C]

Hi Nettie, like you I get shooting pains like a quick electric shock.These pains were more regular a year ago in my arms.If I stretch out on the bed I often get cramp/spasms in my calves.When I bend to try and put my shoe on I get pain in my sides.If I sit still reading I mainly feel the fasciculations all over .My hands are weak..
I try and do a few exercises daily as physio advised it might help prevent some stiffness.Nothing strenuous .I often wonder what else is going on as I used to walk a lot and eat healthier.Now I have to sit most of the day.Fleetingly think that I must be at risk of a stroke or heart attack leading such a sedentary life but it’s not by choice.Best wishes.Mary

[matthew55]

Mary we are truly brother and sister from parents who never met. 😁😍x

[Nettie]

Hi Nettie, like you I get shooting pains like a quick electric shock.These pains were more regular a year ago in my arms.If I stretch out on the bed I often get cramp/spasms in my calves.When I bend to try and put my shoe on I get pain in my sides.If I sit still reading I mainly feel the fasciculations all over .My hands are weak..
I try and do a few exercises daily as physio advised it might help prevent some stiffness.Nothing strenuous .I often wonder what else is going on as I used to walk a lot and eat healthier.Now I have to sit most of the day.Fleetingly think that I must be at risk of a stroke or heart attack leading such a sedentary life but it’s not by choice.Best wishes.Mary

Hi Mary, your symptoms sound very much like yours & Matthews, some days worse than others, like you I was very physical and now sit in a chair all day not good for anybody, the only exercise I get is walking to the window to close the blinds while I use the commode 🥴 and back again 😂 Love Janette x

[Ellie]

Those full-body stretch spasms are something else, aren't they Janette 😏 Impossible for anyone to bend the telegraph poles the legs have become! (Are they still called telegraph poles these days? Most cabling seems to be undergroung now, so I guess I mean street light poles 😃)

[Nettie]

Those full-body stretch spasms are something else, aren't they Janette 😏 Impossible for anyone to bend the telegraph poles the legs have become! (Are they still called telegraph poles these days? Most cabling seems to be undergroung now, so I guess I mean street light poles 😃)

Yes Ellie they hurt so much sometimes feel like my kneecaps are going to pop out 🤦🏼♀️😬 I’ve still got a telegraph pole outside my house lol 🤣 x

[Beemer]

Lot of spasms today and a shooting pain in my arm 🥺 x

I get calf cramps if I point my toes (plantarflexion) and stretch, like first thing after waking up in the morning, I find that if I am quick and move my my feet/foot into (dorsiflexion) the opposite direction I avoid the impending pain.

[Heather R]

Yes I find exercises that stretching the muscles that contract into spasms for me most (eg calf, thigh, hand), have helped to reduce the occurrence

[MartinB]

For those suffering from spasms, do you take Baclofen? My wife gets severe spasm in her legs, 5mg helps. She could take up to 60mg a day is managing on 20-25mg.

[Nettie]

For those suffering from spasms, do you take Baclofen? My wife gets severe spasm in her legs, 5mg helps. She could take up to 60mg a day is managing on 20-25mg.

Yes Martin, I’m taking 20mg but they seem to getting worse 🥴

[Ellie]

Janette, at the height of my spasticity, I was taking 90mg Baclofen daily 😲 (max is 100mg/day) I then lowered my Baclofen and added in Tizanidine, another antispasmodic which works in a slightly different way, which worked better.

As my spasticity lessened, so did the need for high doses of meds, now I need 40mg Baclofen per day, with 2mg Tizanidine added in some nights. My legs are worse at night so I always get into a warm bed, even in summer - I have an electric blanket, on low, on a timer set to come on intermittently throughout the night (wonderful at relaxing my shoulders and back too) If I were to get into a cold bed, my legs would go rigid and take ages to relax, even after my meds.

Don't suffer, is what I'm saying - talk to your physio, nurse and GP about solutions.

Love Ellie.

[Nettie]

Hi Ellie, I did up my Baclofen which just made me really tired and didn’t really help, the physio is coming today to look at some other problems I’m having so will mention it to her see what she thinks. Thanks Janette x

[Ellie]

I can identify with the tiredness, Janette, but my body got used to it and it definitely lessened over time. I take mine 3x daily, early morning before I get up so it doesn't matter if I've a cheeky wee snooze, at 3pm and I manage to stay pretty perky, then my last dose is at bedtime.

You could try an alternative medicine or a good quality CBD oil.

Hope you get sorted. x