Lot of spasms today and a shooting pain in my arm 🥺 x
Announcement
Collapse
No announcement yet.
Spasms
Collapse
X
-
Hi Nettie, like you I get shooting pains like a quick electric shock.These pains were more regular a year ago in my arms.If I stretch out on the bed I often get cramp/spasms in my calves.When I bend to try and put my shoe on I get pain in my sides.If I sit still reading I mainly feel the fasciculations all over .My hands are weak..
I try and do a few exercises daily as physio advised it might help prevent some stiffness.Nothing strenuous .I often wonder what else is going on as I used to walk a lot and eat healthier.Now I have to sit most of the day.Fleetingly think that I must be at risk of a stroke or heart attack leading such a sedentary life but it’s not by choice.Best wishes.Mary
- Likes 2
Comment
-
Originally posted by Mary C View PostHi Nettie, like you I get shooting pains like a quick electric shock.These pains were more regular a year ago in my arms.If I stretch out on the bed I often get cramp/spasms in my calves.When I bend to try and put my shoe on I get pain in my sides.If I sit still reading I mainly feel the fasciculations all over .My hands are weak..
I try and do a few exercises daily as physio advised it might help prevent some stiffness.Nothing strenuous .I often wonder what else is going on as I used to walk a lot and eat healthier.Now I have to sit most of the day.Fleetingly think that I must be at risk of a stroke or heart attack leading such a sedentary life but it’s not by choice.Best wishes.MaryJanette x
Comment
-
Those full-body stretch spasms are something else, aren't they Janette 😏 Impossible for anyone to bend the telegraph poles the legs have become! (Are they still called telegraph poles these days? Most cabling seems to be undergroung now, so I guess I mean street light poles 😃)Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
- Likes 1
Comment
-
Originally posted by Ellie View PostThose full-body stretch spasms are something else, aren't they Janette 😏 Impossible for anyone to bend the telegraph poles the legs have become! (Are they still called telegraph poles these days? Most cabling seems to be undergroung now, so I guess I mean street light poles 😃)Janette x
- Likes 1
Comment
-
Originally posted by Nettie View PostLot of spasms today and a shooting pain in my arm 🥺 xDiagnosed 2nd Jan 2020
Both arms/shoulders affected, left worse than right.
Progressive Muscular Atrophy suspected
- Likes 1
Comment
-
Janette, at the height of my spasticity, I was taking 90mg Baclofen daily 😲 (max is 100mg/day) I then lowered my Baclofen and added in Tizanidine, another antispasmodic which works in a slightly different way, which worked better.
As my spasticity lessened, so did the need for high doses of meds, now I need 40mg Baclofen per day, with 2mg Tizanidine added in some nights. My legs are worse at night so I always get into a warm bed, even in summer - I have an electric blanket, on low, on a timer set to come on intermittently throughout the night (wonderful at relaxing my shoulders and back too) If I were to get into a cold bed, my legs would go rigid and take ages to relax, even after my meds.
Don't suffer, is what I'm saying - talk to your physio, nurse and GP about solutions.
Love Ellie.Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
Comment
-
I can identify with the tiredness, Janette, but my body got used to it and it definitely lessened over time. I take mine 3x daily, early morning before I get up so it doesn't matter if I've a cheeky wee snooze, at 3pm and I manage to stay pretty perky, then my last dose is at bedtime.
You could try an alternative medicine or a good quality CBD oil.
Hope you get sorted. xDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
- Likes 1
Comment
Comment