Just got back from Wythenshawe hospital, had a camera up my nose & down my throat to see if everything was ok with my throat/larynx because I was having issues with the cough assist machine, but everything was fine, a few adjustments to cough assist and now back home & resting. Janette x
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Originally posted by Nettie View PostYes [ ] they were very happy with me
âDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
â
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Good news indeed Janette. Theyâre a good team at Wythenshaw arenât they. I hope that your new cough assist settings work for you and that you have a good restful night to make up food your early start. Love Lynne xALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.
I'm staying positive and taking each day as it comes.
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Originally posted by Lynne K View PostGood news indeed Janette. Theyâre a good team at Wythenshaw arenât they. I hope that your new cough assist settings work for you and that you have a good restful night to make up food your early start. Love Lynne xJanette x
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Originally posted by Lynne K View PostGood news indeed Janette. Theyâre a good team at Wythenshaw arenât they. I hope that your new cough assist settings work for you and that you have a good restful night to make up food your early start. Love Lynne xEach day is made easier with a bit of humour.
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Originally posted by GaryM View Post
That's what I wanted to hear. I'm booked in for an overnight breathing assessment in a week's time and was a bit concerned after Matthew's experience.Janette x
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