How you cope with breathing.i find it very had to catch my breath at times.
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Hi Adele & a warm welcome to the forum.
Have you had a breathing assessment recently, even by video?
There are breathing exercises you can do (physiotherapist can show you) or, if you need it, non-invasive ventilation which helps with the breathing effort.
Are you long diagnosed?
Love Ellie.โDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
โ
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Breath stacking worked for me in the early stages. Depends on where you are naturally. Welcome to our little band of brothers and sisters, like any family we have our ups and downs, but like any family we love eachother. ๐xBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong ๐ค๐๐ค๐xx
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