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    With British Summertime just around the corner our thoughts turn to Summery things. So my question is "can ice cream be eaten with no tongue"? πŸ˜‰πŸ˜„x
    Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

    #2
    I still try and eat it but it gives me too much phlegm x
    Janette x

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      #3
      I was told to avoid ice cream when my swallow started to deteriorate. Having said that, I don't miss it. I've never been a big fan of ice cream or most sweet stuff. I don't half miss a bacon butty though.
      Each day is made easier with a bit of humour.

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        #4
        Originally posted by matthew55 View Post
        So my question is "can ice cream be eaten with no tongue"?
        Are you having that surgically removed too... 😏

        ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
        Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

        ​

        Comment


          #5
          Originally posted by GaryM View Post
          I was told to avoid ice cream when my swallow started to deteriorate. Having said that, I don't miss it. I've never been a big fan of ice cream or most sweet stuff. I don't half miss a bacon butty though.
          Oh yes I miss a bacon butty πŸ₯΄πŸ˜‹ and my hubby sits there nearly everyday with one πŸ€¦πŸΌβ€β™€οΈ x
          Janette x

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            #6
            Ellie I'm seriously considering having it taken out for all the good it does me. πŸ˜‰πŸ˜„ Janette that's cruel and unusual punishment in my book. πŸ˜‰πŸ˜„x
            Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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              #7
              And I can't manage ice cream any more - dribbles out the sides of my mouth in a most attractive way πŸ˜‹

              But I can manage thick Greek yogurt, chilled mousse and most of those little dessert pots, straight from the fridge πŸ‘
              ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
              Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

              ​

              Comment


                #8
                Originally posted by matthew55 View Post
                Ellie I'm seriously considering having it taken out for all the good it does me. πŸ˜‰πŸ˜„ Janette that's cruel and unusual punishment in my book. πŸ˜‰πŸ˜„x
                I know I’m going to kill him 🀣🀣
                Janette x

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                  #9
                  Originally posted by Ellie View Post
                  And I can't manage ice cream any more - dribbles out the sides of my mouth in a most attractive way πŸ˜‹

                  But I can manage thick Greek yogurt, chilled mousse and most of those little dessert pots, straight from the fridge πŸ‘
                  I had a Milka chocolate bar today dipped in my brew πŸ˜‹ made a mess but thoroughly enjoyed it x
                  Janette x

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                    #10
                    Ellie I have to ask how you get the stuff into your mouth far back enough? πŸ˜‰πŸ˜„x
                    Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

                    Comment


                      #11
                      Originally posted by matthew55 View Post
                      Ellie I have to ask how you get the stuff into your mouth far back enough? πŸ˜‰πŸ˜„x
                      πŸ€” Not sure if that's a serious question! If it is, somebody feeds me like Cleopatra was fed 🀩

                      ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                      Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                      ​

                      Comment


                        #12
                        Nettie
                        Forum Member
                        Nettie I can just picture it Janette πŸ˜‚
                        ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                        Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                        ​

                        Comment


                          #13
                          Ellie I was being serious. Getting stuff off spoons is a trick I seem to have forgotten! πŸ˜‰πŸ˜„x
                          Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

                          Comment


                            #14
                            I'm pleased to say that I managed a little ice cream via a fork last night. It was wonderful. πŸ˜„πŸ˜x
                            Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

                            Comment


                              #15
                              Originally posted by matthew55 View Post
                              I'm pleased to say that I managed a little ice cream via a fork last night. It was wonderful. πŸ˜„πŸ˜x
                              I too enjoy a spot of ice cream. Lucky to still have taste and swallow, but it is just a struggle to get it into my mouth.
                              Diagnosed 2nd Jan 2020
                              Both arms/shoulders affected, left worse than right.
                              Progressive Muscular Atrophy suspected

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