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Activities for people with MND?

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    Have you given thought to card games on the computer? I have played Bridge for around 50 years at various clubs both in UK and overseas. It takes quite a lot of instruction before it all fits into place. Because of the pandemic the only place to play is on the computer but you will need your hands to do that. I have Bulbar Palsy which affects my speaking and swallowing so moving around and using my hands are not a problem for me.
    There is an English Bridge Union (EBU) but I don't know whether they have a teaching programme or maybe a Bridge Club near you could help. If you would like me to investigate a teaching programme let me know.


      Stonehengeman Yes please



        That is good. Take a look at the English Bridge Union website. Put EBU into Google and you will get a lot of information. Can you please let me know where you live and I will make enquiries as to whether there is a Club in your area? Regards John Summerhayes


          Stonehengeman. I live in Hertford. Thanks John n



            The website for Hertfordshire bridge is Have a look at that. There has been a moratorium on playing at a Club and most clubs are currently playing on line. If you open the Hertfordshire County website there is mention of Learning Bridge in Herts and 2 clubs are offering Learning Bridge on line. Have a look and feel free to come back to me if you think I can be of any more help. John Summerhayes (Stonehengeman)


              Thank you everyone,
              Diagnosed 2nd Jan 2020
              Both arms/shoulders affected, left worse than right.
              Progressive Muscular Atrophy suspected


                Stonehengeman Many thanks John. I shall look at this



                  Originally posted by denise View Post
                  I've found something different on YouTube it's really well read and it's all about technology scfi- virtual reality it's so weird or perhaps not dependent on what you like.

                  It's called:
                  Darkworlds London
                  read by Tony walker.

                  Denise xx
                  Thanks denise will give this a go
                  Always happy, why moan when you can smile
                  (Paul in London)


                    Beemer are online jigsaws any good?
                    You just slide the pieces on a touch screen phone / tablet / laptop.

                    Good for hand - eye coordination.

                    Loads on this site:-

                    2020: odd symptoms. Nov 2021: Hand atrophy.. Mar 2022: Second arm atrophy - Confirmed Apr 2022: MND.
                    Also Crohn's Disease from 2005ish. (Hi, I'm Dan in Cheshire)...


                      Why's no one mentioned any sort of interaction with pets? Dogs are more obliging than cats but even hens can cope with a cuddle (that's a bit much for me - I'm a fur not a feather man!)


                        I have a morning routine on my iPad. Quordle, Octordle, Hand & Foot, Hearts and Lumosity brain games. Then I try to learn a new game or variation of a game I already know once a week. After that I return emails, check Facebook and try to do one productive thing around the condo. Today....drumroll......setting up the new box for Direct TV (our condo is changing providers.). Tomorrow will be filling my pill boxes for the next month and praying I don't drop pills on the floor.

                        My arms are still pretty good so I play cards with three friends once a week.

                        I have lunch in my lift chair with the heating pad on watching an hour or two of TV.

                        By then, it's around 2pm. I might get calls, texts, or emails. I check banks and credit cards and pay bills. I take my PWC down to the mailroom or just outside for a ride around the condo.

                        Then it's time for my final meal, a protein shake.

                        At about 7 I go to my bedroom for the night. If there's a pretty sunset I might take my PWC to the roof deck and watch the sun set.

                        After I get in my room I watch TV until I'm tired enough to fall asleep. I wear blue light blocking glasses. I have no idea if they work. I usually do guided imagery, meditation, or contemplative prayer last thing after the lights are out.

                        Of course, my dog gets fed and cuddled throughout the day but he likes TV more than I do.
                        Living live on the beach. Dx 2015 ALS (limb onset)


                          My activities are climbing out of bed on to my knees, trying to wash my teeth while balancing one leg against the bath.

                          Down the stairs on my bottom , then feeding both dogs , dropping their food bowls onto the floor so all the food falls out.

                          Nightime is fun , going upstairs on one foot and one knee, reaching the hand rail for some sort of support.

                          Who needs puzzles 🤪


                            SAMMY88 Make sure you protect your knees. I'm paying for kneeling on the hard bathroom floor the first couple of years after I was diagnosed. My right knee is shot and in pain. There are so many things wrong with it.

                            Your post made me cry.

                            Do you have a plan for when you can't get up and down the stairs? Please don't fall.
                            Living live on the beach. Dx 2015 ALS (limb onset)


                              KimB Sorry to hear about your painful knees. I do everything on my knees lately , think it's my calves that are weak.

                              I had a bad fall 3 weeks ago, landed on my only good arm , typical eh.

                              No plans as yet , my family think im gonna have a miracle recovery 😆.


                                SAMMY88 I'm sorry. My SIL thinks I'll "discover" the cure for ALS I just let it pass for years and finally said "death is the cure." It shocked her....but she keeps saying it.
                                Living live on the beach. Dx 2015 ALS (limb onset)