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    Belching

    Lovely topic I know.

    My husband has started suffering gagging/retching/belching combination when he takes medicine and sometimes when drinking the fortijuice. For context, he has recently lost the ability to eat and does not have a feeding tube fitted.

    Does anyone else experience this? Is it normal? Anything to help prevent it?

    thanks as always

    #2
    Originally posted by Bexxy View Post
    ... he has recently lost the ability to eat and does not have a feeding tube fitted.
    Can I just back up from the burping, Rebecca - can you expand on the "lost the ability to eat" please. Is it his swallow preventing him to eat solids and he can still drink Fortisips and swallow tablets?

    Is there a plan to get a feeding tube or, if not, I hope there is a plan and support for you both.

    Re the belching, gagging,retching: I do think his GP/palliative nurse/Clinic or community SLT should be told. It may be reflux and a PPI medicine such as Lansoprazole will sort it, but it may be swallow related or appetite related.

    Best to you both.

    Love Ellie.

    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
    Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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      #3
      Hi ellie

      he has had a similar period of illness to what he had last October, 5 weeks now. Chest infection followed by oral infection followed by urine infection all accompanied by lots of unexplained symptoms and an assertion by the GP that there was no infection but he was in fact in end stages.

      Part of this is that he has been unable to eat. He feels like everything sticks in his throat, even slightly thick liquids. He didn’t want a feeding tube before but now regrets not getting it. The main issue he had with getting it was the 5 day hospital stay to get it. He is pencilled in to get it in a couple of weeks but we shall see if he backs out.

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        #4
        Has he a palliative care team? They are often better at taking an overall view of people.

        I wonder if he can get a nasogastric tube as an interim solution.
        ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
        Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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          #5
          He has some support from the local hospice. A nasogastric tube was mentioned but he won’t go in to hospital so no use. Paramedics were out and told him if he didn’t go in for IV antibiotics he may not survive but he still declined.

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            #6
            You both need more support - hopefully his hospice does hospice at home.

            Big hug to you Rebecca xx
            ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
            Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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              #7
              Thanks Ellie. We seem to be in a black hole with no mnd nurse covering our area

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                #8
                Admin_MND Come on Admin this is where you need to urgently step in and help Bexxy get support. Thanks.

                Richard
                Richard

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                  #9
                  Originally posted by richard View Post
                  Admin_MND Come on Admin this is where you need to urgently step in and help Bexxy get support. Thanks.

                  Richard
                  Thanks Richard, we've let the MND Connect team know about this thread, so hopefully one of them will be able to provide some guidance soon.
                  Our working hours are Monday to Friday 8:30am until 5pm

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                    #10
                    Hi Bexxy

                    Is your husband struggling to actually swallow the medication? Sometimes gagging/retching/belching can be caused when the medication doesn't go down smoothly and catches in the throat. Lots of medications can be provided in a soluble form which can be easier to swallow than trying to manage a tablet. It's worth speaking to your husband's GP or pharmacist about this.

                    Are the Speech and Language Therapist (SLT) and a dietician providing you and your husband with support and advice? Even if he chooses not to have a feeding tube, they should be advising on textures of food and nutritional advice. We do have an Eating and Drinking Guide which provides lots of information about eating and MND as well as recipe ideas. Please do let me know if you would like a copy and I can send one out for you.

                    Are you happy to let me know whereabouts in the country you are? I'd be happy to look to see what local support we have that might be helpful. Please do feel free to contact us either via private message or at [email protected] or on 0808 802 6262 and we will do everything that we can to support both you and your husband.

                    Best Wishes

                    Rachel
                    MND Connect Adviser
                    MND Connect
                    Contact us on 0808 802 6262 or at [email protected]

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