hi all,
having progressed rapidly since Christmas i now have carers 4 times a day and despite my initial fears its been a massive help. my question is regarding care overnight when i can no longer use my arms and turn over in bed - i am on niv with nippy and its a worry that if i have breathing problems and can't raise an alarm... do any of you have carers overnight and if so how did you get them and at what stage of the disease
thanks
karl
having progressed rapidly since Christmas i now have carers 4 times a day and despite my initial fears its been a massive help. my question is regarding care overnight when i can no longer use my arms and turn over in bed - i am on niv with nippy and its a worry that if i have breathing problems and can't raise an alarm... do any of you have carers overnight and if so how did you get them and at what stage of the disease
thanks
karl
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