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    Decided to move upstairs

    Hi all I’ve made the decision to move upstairs now as there getting to dangerous and I’m not putting anyone at risk anymore helping me get up there. Toilet shower and beds up here what more do I need. Isn’t life great 👍🏻

    #2
    Hi,As long as it’s what you want to do.Was a stairlift an option or maybe you have explored that option.I had a through floor lift installed as I can longer do stairs or use a stair gate.
    However,I often spend a lot of time upstairs to rest my weary legs on the bed while I read, watch TV etc.
    I hope everything is accessible for you upstairs.
    Best wishes
    Mary

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      #3
      I have also thought about moving upstairs, as I struggle on the last few steps and have collapsed near the top of the stairs, on the corner.
      The problem would then be that I would be alone, I know this will happen at some point, until/unless a lift is fitted. I have been told that the stairs are not suitable for a stair lift however. I hope you have at least a TV upstairs.
      Diagnosed 2nd Jan 2020
      Both arms/shoulders affected, left worse than right.
      Progressive Muscular Atrophy suspected

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        #4
        I’m the same beemer it’s the last few steps. Yeah got sky up here plus other entertainment. People just don’t reply to me anymore when I ask for the expensive things like stair lift ect.. getting mattress walkers hand rails ect... pretty easy. I just can’t be bothered anymore.

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          #5
          Its a big decision to live upstairs. I fully understand how the fight to get the equipment you need is just too hard sometimes.

          We are all different but we made the decision to move to a ground floor apartment when I was struggling with stairs. They were becoming dangerous even before I had a diagnosis. I didn't want to be isolated from my family and if we going to have to pay for a wetroom i wanted to do it in a suitable home.. We were lucky enough to have this option and it wouldn't suit everyone.

          Love Debbie x

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            #6
            I hope that you enjoy your move upstairs but when the lockdown is lifted how can you get out into the fresh air? From today we can all use our gardens with eight of 6 people or 2 households,

            I think the both of you ought move to either an adapted bungalow or ground floor flat if your current places cannot be adapted. Love Lynne x
            ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

            I'm staying positive and taking each day as it comes.

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              #7
              House44 Upstairs, downstairs, whatever suits you best, Wayne. Day to day it makes little difference where we spend our time anyway.

              The thing that would have put me off is not having access to outdoor space but, in the grand scheme of things, it's whatever is easiest for you, isn't it.

              What if you have to go to an appointment? And, do you know that stair lifts can be rented?

              Love Ellie.
              ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
              Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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                #8
                Hope works it proves mananageable mate

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                  #9
                  i hope you have a plan to get back down if you need to.
                  when i can think of something profound i will update this.

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                    #10
                    The stair lift thing is ok but I’m on my own till 4.30/5pm so can’t get on it anyway on my own. I missed my last appointment because they tell me nothing new. I’ll get in touch with respiration team as and when I need it I suppose. It’s nice up here. Can spy on the neighbours better 😂😂

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                      #11
                      Just have to make out you're not in if someone rings the door bell. 😄
                      when i can think of something profound i will update this.

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                        #12
                        Hope you're still managing ok House

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                          #13
                          Wayne just to say we told all the medical people we would not be attending any hospitals, GP’s or clinics due to travel and toileting issues. The only team that point blank refused to home visit was dietitian which was no loss because Sarah our salt was excellent. We even had a consultant come to us a couple of times. Do what’s right for you mate.
                          Most of it is zoomy now anyway.

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                            #14
                            Zoom is fine when you can speak. 😉
                            Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong 🤗😘🤗😁xx

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                              #15
                              Yeah I know mate. On the odd occasion we did one I did the talking but obvs if you are on your own..... 😞

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