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    I'm back in bed

    I'm back at Whythenshaw and so far it's a totally different experience to last time. I may even get used to it this time.
    Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong ๐Ÿค—๐Ÿ˜˜๐Ÿค—๐Ÿ˜xx

    #2
    Here's hoping ๐Ÿคž๐Ÿคž xx
    โ€‹Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
    Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

    โ€‹

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      #3
      What are you in for Matthew? Whatever it is I hope all is well. Keep your chin up mate. Lizzie x

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        #4
        Sorry to hear Matthew โ€“ as Lizzie says I hope all is well that you able to keep cheerful in the face of what is presumably additional adversity?
        Warmly


        Andy

        โ€‹Diagnosed 03/2015. One sided limb onset (arm) sporadic PMA/MND - now 50% left arm and 90% right arm, plus other bits including left shoulderโ€“ Campaign contact Winchester and Southampton branch, and trustee of the Association

        "Things turn out the best for people who make the best of the way things turn out"

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          #5
          they've probably put a sign at the end of your bed saying 'beware of the trouble maker' hope everything goes well. why are you there anyway?
          denise xx
          when i can think of something profound i will update this.

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            #6
            Fitting NIV and cough assist. They can't do enough for me. I think they're scared I will complain. ๐Ÿ˜
            Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong ๐Ÿค—๐Ÿ˜˜๐Ÿค—๐Ÿ˜xx

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              #7
              Hope it continues to go well Matthew. Glad you're being treated as you should be this time xx

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                #8
                Good Luck Matthew,glad you are being treated well.
                Mary

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                  #9
                  I'll send you some Tizer. Take care mate

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                    #10
                    Hope everything goes well this time, Matthew. I found the respiratory physios to be excellent.
                    Each day is made easier with a bit of humour.

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                      #11
                      I echo the others.

                      Let me know if they drug you right up then Iโ€™ll make my next move ๐Ÿ˜

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                        #12
                        Hope all goes well Matthew and they continue to treat you well! X

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                          #13
                          Hi Matthew

                          Sounds like someone had a kick up the proverbial and hopefully some training x hope that you are comfortable xx

                          Sarah x

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                            #14
                            I too hope that everything goes well for you Mathew. I hope too that you manage to sleep. Wards are noisy and too bright usually, Lynne x
                            ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

                            I'm staying positive and taking each day as it comes.

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                              #15
                              Just had me a couple of sleeping pills so fingers crossed. ๐Ÿ˜
                              Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong ๐Ÿค—๐Ÿ˜˜๐Ÿค—๐Ÿ˜xx

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