I'm back at Whythenshaw and so far it's a totally different experience to last time. I may even get used to it this time.
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Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong ๐ค๐๐ค๐xx -
Here's hoping ๐ค๐ค xxโDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
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What are you in for Matthew? Whatever it is I hope all is well. Keep your chin up mate. Lizzie xComment
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Sorry to hear Matthew โ as Lizzie says I hope all is well that you able to keep cheerful in the face of what is presumably additional adversity?Warmly
Andy
โDiagnosed 03/2015. One sided limb onset (arm) sporadic PMA/MND - now 90% left arm and 90% right arm, plus other bits including both shoulders and also some breathing issues โ Campaign contact Winchester and Southampton branch, and trustee of the Association
"Things turn out the best for people who make the best of the way things turn out"Comment
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they've probably put a sign at the end of your bed saying 'beware of the trouble maker'
hope everything goes well. why are you there anyway?
denise xxwhen i can think of something profound i will update this.Comment
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Fitting NIV and cough assist. They can't do enough for me. I think they're scared I will complain. ๐Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong ๐ค๐๐ค๐xxComment
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Hope it continues to go well Matthew. Glad you're being treated as you should be this time xxComment
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Good Luck Matthew,glad you are being treated well.
MaryComment
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I'll send you some Tizer. Take care mateComment
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Hope everything goes well this time, Matthew. I found the respiratory physios to be excellent.Each day is made easier with a bit of humour.Comment
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I echo the others.
Let me know if they drug you right up then Iโll make my next move ๐Comment
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Hope all goes well Matthew and they continue to treat you well! XComment
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Hi Matthew
Sounds like someone had a kick up the proverbial and hopefully some training x hope that you are comfortable xx
Sarah xComment
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I too hope that everything goes well for you Mathew. I hope too that you manage to sleep. Wards are noisy and too bright usually, Lynne xALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.
I'm staying positive and taking each day as it comes.Comment
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Just had me a couple of sleeping pills so fingers crossed. ๐Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong ๐ค๐๐ค๐xxComment
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