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    #16
    How was your night Matthew

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      #17
      How's it going 😚
      when i can think of something profound i will update this.

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        #18
        Wishing you well Matthew

        Richard
        Richard

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          #19
          Night was so so but I'm furious that my custom made gum shields had disappeared.
          Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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            #20
            Off your side table? Oh that's horrible. Can't think why anyone would want to take them. Not exactly healthy to take something like that. 😚
            when i can think of something profound i will update this.

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              #21
              Hope you’re okay today Matthew. I trust you will find your gum shield as one of the nurses may have put it to sterilise.
              I’m going to do this even if it kills me!

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                #22
                They have definitely vanished and I have another night in this dump.
                Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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                  #23
                  Don't get upset. Find out what's happened first. I can't think someone would want to put them in their mouth. Perhaps Barry is right if they were uncovered they would be a risk to you. Sorry you are in for another night. πŸ˜™
                  when i can think of something profound i will update this.

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                    #24
                    That's really annoying Matthew, hope they have turned up.. And all the very best x
                    Diagnosed July 2020, ALS bulbar onset.

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                      #25
                      Sadly I am too far gone for cough assist so breath stacking is the only thing possible.
                      Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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                        #26
                        matthew55 Breath stacking with a machine or an LVR bag?

                        Big, warm, tight hug to you Matthew xx
                        ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                        Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                        ​

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                          #27
                          With my mouth and breath only. Hugs back at you. 😁
                          Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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                            #28
                            Bizarre as this will sound to you right now, you must have 'good' lung function if you can breath stack unassissted - the word 'good' being very relative!!

                            Did they try one of these on you?
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                            ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                            Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                            ​

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                              #29
                              Matthew hope you have another so so or better night. Also hope the tooth fairy brings your gum shield back 😁

                              None of this has dulled your chess sense. Reckon you have mate in two or possibly 3 πŸ€¦β€β™‚οΈ

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                                #30
                                Hope you have a good night tonight Matthew and that you're home very soon x

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