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    #31
    Thanks guys 😁
    Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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      #32
      Hope you have a good night x
      Janette x

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        #33
        How are things this morning Matthew

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          #34
          They will be will be brilliant if they let me go home later !mate 😁
          Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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            #35
            🀞

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              #36
              matthew55 Well to use what I am sure is one of your phrases β€œDon’t let the (insert word of choice) get you down”
              Wishing you well

              Richard
              Richard

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                #37
                Hope they let you out asap. Did you find your missing bits? πŸ˜™
                when i can think of something profound i will update this.

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                  #38
                  No, my shields have gone 😞
                  Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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                    #39
                    Just got back home and very happy to be here. Thanks again for all the support guys. 😍
                    Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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                      #40
                      Originally posted by matthew55 View Post
                      Just got back home
                      With or without the NIV?

                      And Welcome Home x

                      ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                      Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                      ​

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                        #41
                        Two nippies and a separate humidifier.
                        Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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                          #42
                          Two!! Ooh, get you πŸ€΄πŸ˜‚πŸ˜˜
                          ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                          Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                          ​

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                            #43
                            Welcome back matey

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                              #44
                              So glad you're home Matthew. Hope you get on ok with your NIV . X

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