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are eye lids affected by MND?

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    #16
    Same here
    GaryM
    Forum Member
    GaryM especially as I am 100% reliant on my eye gaze. Eyes, cognition and executive function are my red lines.

    It is rare for eyelids to fail - sometimes can happen to a trached person, not due to the invasive ventilation, but to the person's progression.
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
    Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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