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are eye lids affected by MND?

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  • Ellie
    replied
    Same here GaryM especially as I am 100% reliant on my eye gaze. Eyes, cognition and executive function are my red lines.

    It is rare for eyelids to fail - sometimes can happen to a trached person, not due to the invasive ventilation, but to the person's progression.

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  • GaryM
    replied
    If my eyelids close then that'll be it for me. The only enjoyment I have left is seeing and listening.

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  • Ellie
    replied
    Originally posted by nunhead_man View Post
    So I'm wondering if this is the long-term effects of Bells Palsy coming back to haunt me
    Take a course of antivirals and/or steroids to see if it improves?? That may answer your question.

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  • matthew55
    replied
    Well I can tell you that both eyelids tremor regularly but my tears still flow. Guess we can't all be lucky. 😁

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  • nunhead_man
    replied
    Good morning,

    I'm afraid I have no mind to treat this with levity this morning.

    The line I have in my head at the moment is "I had no idea that MND would make me blind".

    Intellectually I'm interested that it is my right eye lid that is affected because I had Bell's Palsy some time ago – for those that do not know this is caused by inflammation of the 7th cranial nerve where it goes through a little bony port in the middle ear and that inflammation causes the nerve fibre to swell and therefore jams the signal. This in turn caused the right side of my face to drop including my eye blink not working and my tears ceasing to run so leading to potential damage to my cornea. In fact, I found GP that knew all about it and she had me zap the infection with antivirals and steroids and it went away over a period of about 2 weeks and had no more trouble.

    Although this happenstance for me had my neurologist looking for other inflammation in my spine that might be implicated in my MND although didn't find any.

    So I'm wondering if this is the long-term effects of Bells Palsy coming back to haunt me

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  • denise
    replied

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  • Beemer
    replied
    Originally posted by denise View Post
    Beemer

    you never know your luck!

    😄
    I'm all for new experiences, but I think I will pass on that one Denise.

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  • denise
    replied
    Beemer

    you never know your luck!

    😄

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  • Beemer
    replied
    Oh bloody great, still, I have an excuse for winking at the ladies, but doubt the blokes are gonna be impressed.

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  • Music man's wife
    replied
    Fancy that! Hubby has a right sided eyelid droop, his MND is much worse on his right side.

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  • GaryM
    replied
    It just keeps giving doesn't it.

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  • denise
    replied
    Oh damn. Stephen was complaining about his eye lids and I told him to stop being stupid. Whoops 😁

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  • matthew55
    replied
    I have recently been having facilitations in both eyes and my nose which moves my glasses. Very disconcerting 😁

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  • nunhead_man
    replied
    Good afternoon Ellie

    Thank you

    Oh joy! For some reason I thought eye lids were not voluntary

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  • Ellie
    replied
    Yes, the muscles which enable eyelids to open and close are voluntary, and can be affected in ease of opening, closing or they droop.

    My own eyelids are very difficult to open if I'm not uprigt and I haven't been able to wink for a long time..

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