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    #16
    Hope you manage to find something that works for you Janette x

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      #17
      Hi Gordan I’ve spoke to physio this morning and she’s recommended a slide sheet, she’s ordered me one so will see how that works thanks Janette x
      Janette x

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        #18

        Hope that works well, Janette.

        Slide sheets can take practice - you don't want it to be pulled the wrong way when it's being removed and end up on the floor 😲

        Daft as it seams, read the instructions - some are single layers which slide in one direction only, others are doubled and slide in one direction only.

        Good luck x
        ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
        Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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          #19
          What will we do without you Ellie? Meant in the nicest possible way. 😍
          Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong 🤗😘🤗😁xx

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            #20
            Originally posted by Ellie View Post
            Hope that works well, Janette.

            Slide sheets can take practice - you don't want it to be pulled the wrong way when it's being removed and end up on the floor 😲

            Daft as it seams, read the instructions - some are single layers which slide in one direction only, others are doubled and slide in one direction only.

            Good luck x
            Phil’s a bit heavy handed so will warn him 🤣 physio said she will show us how to use it Thanks Ellie x
            Janette x

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              #21
              Originally posted by matthew55 View Post
              What will we do without you Ellie? Meant in the nicest possible way. 😍
              I know what you mean Matthew, she’s the font of all knowledge 🤩 I wish I was like that x
              Janette x

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                #22
                Remember, I am into my 15th year of living with ALS/MND, so I've been subjected to almost everything at this stage, that's all 😏

                And that includes almost landing on the floor when a slide sheet was pulled rather vigorously from under me 😅😅
                ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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                  #23
                  Okay but your still a star 😍
                  Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong 🤗😘🤗😁xx

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                    #24
                    And you are a star for being so positive after all those years x
                    Diagnosed July 2020, ALS bulbar onset. PEG and ventilator (mainly at night), and pretty poor speech, but legs still about functioning!

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                      #25
                      Hi Janette.

                      Did the slide sheet make an appearance yet? x
                      ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                      Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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                        #26
                        Ellie Its being delivered tomorrow and physio is coming Friday to show us how to use it properly so fingers crossed 🤞🏻


                        Janette x

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