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    It had to happen

    For quite a long time I have had no issue with my PEG site. Until now that is. I seem to have the inside of my tummy coming out of my hole. The hospital wasn't bothered about it but it's starting to worry me. Just the way my luck is going these days. πŸ˜‰
    Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

    #2
    That’s hypergranulation tissue, try to get rid of it before it becomes chronic. Check there's nothing putting tension on the tube causing rubbing, check too for foreign bodies causing irritation.

    Common treatments are: (everybody has their favourites, I don't think there is a clear winner!)


    Regular salt washes, it may sting - not with tissue or cotton wool, use something which won’t shed fibres.
    Use a hydrocolloid dressing on the tissue, cut to size if needed. (widely available if you're going down the DIY route)
    Use a low-grade steroid cream.
    Use impregnated tape (think these need a script?)

    Good luck x
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
    Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

    ​

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      #3
      Oh, my own fave is the old-fashioned silver nitrate stick, the use of which now is generally frowned upon, but my excellent, old-school community nurse used it the one and only time I had hypergranulation tissue, and it was completely banished for good πŸ‘πŸ‘πŸ‘
      ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
      Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

      ​

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        #4
        Ok now I'm worried what am I looking for? Stephens looked a bit brown this morning but just checked by nurses who seemed to think it's ok. πŸ€”

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          #5
          Thanks mate πŸ‘
          Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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            #6
            My peg split water squirting out district nurses came to replace 2 months after it should be replaced .

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              #7
              Originally posted by matthew55 View Post
              For quite a long time I have had no issue with my PEG site. Until now that is. I seem to have the inside of my tummy coming out of my hole. The hospital wasn't bothered about it but it's starting to worry me. Just the way my luck is going these days. πŸ˜‰
              When I was in Wythenshawe I spoke with their PEG specialist nurse and she said it looks like pink broccoli. She said one treatment was to sprinkle table salt on it and then wash it off soon after. As you're normally one for experimentation, it might be worth a try.
              Each day is made easier with a bit of humour.

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                #8
                Originally posted by GaryM View Post
                She said one treatment was to sprinkle table salt on it and then wash it off soon after.
                Literally, rubbing salt in the wound πŸ˜„πŸ˜„

                ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                ​

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                  #9
                  Originally posted by denise View Post
                  Ok now I'm worried what am I looking for?
                  You'll know if it's hypergranulation tissue, it looks raw and red and, as Matthew said, it's as if his inside came out (which, in essence, it is what happens, the inside tissue is irritated and keeps growing)


                  Originally posted by denise View Post
                  Stephens looked a bit brown this morning but just checked by nurses who seemed to think it's ok.
                  What was brown? If it's a bit of ooze, that's pretty normal, providing there's no pain. But you did the right thing in checking it out, if it gave you peace of mind x

                  ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                  Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                  ​

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                    #10
                    Im happy if they are. Best help we've had to be honest 😊

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                      #11
                      Salt swabs and of all things acne patches. It seems your never too old. 😁
                      Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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                        #12
                        Udder cream. Everything goes πŸ˜πŸ™„πŸ˜„

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                          #13
                          I'm very happy today because my stomach has gone back in. Salt scrub and salt liberally pilled with an acne patch. Changed twice a day. Now I just need to get rid of the red patch. 😁
                          Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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