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    #16
    Originally posted by matthew55 View Post
    When I start to use it
    Pure curiosity - why are you not using it? Obvs you don't have to divulge...

    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
    Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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      #17
      It's the part of me that that wants to stay as a normal boy for a little longer. 😄

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        #18
        I see.
        ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
        Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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          #19
          I must be a bit odd, the dry mouth doesn't really bother me that much. In fact it feels more like a relief from the litres of saliva that I battle with throughout the rest of the day. It's a bit of a nuisance if I'm trying to tell Louise something in the morning though.
          Each day is made easier with a bit of humour.

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            #20
            Originally posted by matthew55 View Post
            It's the part of me that that wants to stay as a normal boy for a little longer. 😄
            Normal???😀😀😀 You are unique and one in a million or are we all 1 in 300😢

            Richard
            Richard

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