Cramps in upper arms and hands

[richard]

My MND primarily presents itself in my legs and has done since the beginning. I am unable to walk and use a wheelchair. However I do get the occasional severe upper body cramp. I have been prescribed Tramadol on the understanding that I only take one or two on an as needed basis.

Yesterday I was getting severe aching cramp, not a spasm, in both of my upper arms and also painful spasms in my hands. Is this the next stage of my journey or just one of those other things I need to learn to live with?

Richard

[matthew55]

As forest hump said life is like a box f chocolates you never know what you are going to get next. That's MND all over 😁

[Beemer]

As forest hump said life is like a box f chocolates you never know what you are going to get next. That's MND all over 😁

Exactly, we are all different.

[Mary C]

Hi Beemer, I get cramps in both hands and fasciculations.The strength is going now from my hands.I also get cramps in my hands if I grip something(door handles, hairbrush,electric toothbrush).
Its changed from like electric shock type sensations in my arms to aches.My neurologist initially said MND isn’t painful but the contractures in muscles cause the aches and pains.
6 months ago the fasciculations were constant and all over me.Now they are still there but in different places like face, bottom, hands .
MND fasciculations never let me forget I have this disease.I tried a few gentle exercises but made no noticeable difference.

Well the sun is shining and a friend is visiting late morning.We will go for a ride out later and enjoy the scenery .Determined to enjoy this new day and hope your pains subside soon.
Best wishes
Mary

[Ellie]

richard Sorry you're experiencing painful cramps.

Personally, I'd try magnesium supplements, CBD oil, massage (maybe with magnesium oil or CBD cream, but there is not much evidence on whether these topical products actually reach the muscles), apply heat, Voltarol cream or similar, or even a low dose Diazepam (especially at night), before taking Tramadol, as it doesn't do much more than treat the pain and not its cause.

If cramps are very debiitlating, you could try a lose dose of Baclofen but be aware that it may take a while to get the dose bang on.

BTW, I like your profile pic!

Love Ellie.

[richard]

Thank you all for your comments and suggestions

Richard