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    Heart and other issues

    I had an ECG, blood test and blood pressure done as part of the preparation for joining the MND Smart Trial. Blood test showed liver a bit off. ECG showed something (the nurse said “movement “) needed doing again. Blood pressure high.

    Contacted my GP online and another ECG and blood pressure done. Blood pressure was down but not quite normal. Then doc rang me and asked family medical history and my medical and symptoms history taken. She said that the ECG could indicate that I’d had a minor heart attack. There is family history of heart problems.

    I had another blood test and my liver is ok. But my blood was thick. My mum had polythysemia so another blood test tomorrow to check for that. I’ve got appointments for a 24hr blood pressure test (at home) and an echocardiogram in three weeks. When all tests are done I’ve got to contact my GP again with the view to discussing results and treatment options.

    Another thing to deal with but same as always I take things in my stride. Lynne
    Last edited by Lynne K; 13 April 2021, 12:57.
    ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

    I'm staying positive and taking each day as it comes.

    #2
    Oh Lynne, sorry to hear that. I guess it's good that you had the pre-trial tests as you can find out what's going on and to have treatment/meds to improve the heart/BP/blood issue.

    Wishing you well.

    Love and a big hug,
    Ellie x
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
    Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

    Comment


      #3
      Thanks Ellie. Just sitting in car after our second AstraZeneca vaccine x
      ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

      I'm staying positive and taking each day as it comes.

      Comment


        #4
        Fingers crossed that you won't have any nasty side effects - the 2nd shot is meant to be easier, hopefully that's the same for you. x
        ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
        Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

        Comment


          #5
          Lynne, I love you’re so positive even with everything that’s hitting you.

          Take Care

          Comment


            #6
            hi lynne
            im glad you are taking it all in your stride. i would be worried but hey that doesnt help does it just makes things worse.
            love and hugs denise xxxxx

            Comment


              #7
              Thanks Denise and Bowler (sorry head tired so can’t think names) Lynne x
              ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

              I'm staying positive and taking each day as it comes.

              Comment


                #8
                Ellie the nurse who gave us the second shot today (hurt more as she did it slower than the first one) said that that the side effects from this would probably be similar. She warned us to watch out got bad headaches or bruising and get checked out if so. That’ll be because of the recent blood clot scare but it’s so rare that I’m not stressing that it, xx
                Last edited by Lynne K; 14 April 2021, 13:06.
                ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

                I'm staying positive and taking each day as it comes.

                Comment


                  #9
                  Sorry to hear that you have more health issues Lynne. Hopefully there will be a treatment, unlike MND. X
                  I’m going to do this even if it kills me!

                  Comment


                    #10
                    Thanks Barry x
                    ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

                    I'm staying positive and taking each day as it comes.

                    Comment


                      #11
                      Polythysemia (I haven’t a clue hope it’s spelled) can be sorted out mostly through diet and medication like my mums. She had to avoid iron in her diet. But severe sufferers have to have all of their blood changed every so often in addition to dietary changes and medication. So I hope that I don’t have this and that my thick blood that day was due to dehydration. I was very thirsty whilst I was waiting, having deliberately not drank much so that I didn’t have an urgent need to pee whilst I was out.

                      My mum lasted to 82 despite heart disease, diabetes (weight related) and polythysemia. Lynne
                      Last edited by Lynne K; 13 April 2021, 17:04.
                      ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

                      I'm staying positive and taking each day as it comes.

                      Comment


                        #12
                        So sorry to hear about your recent health problem Lynne.... as if there isn't enough to worry about ! Hopefully it will be sorted soon.

                        I had less side effects with my second astra zeneca vaccine so I'm hoping you're feeling OK now .

                        Love and hugs to you,
                        Debbie x

                        Comment


                          #13
                          Thanks Debbie, I’m less tired now than the evening that we had our first vaccine so we hope that this means you are correct. Lynne x
                          ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

                          I'm staying positive and taking each day as it comes.

                          Comment


                            #14
                            Keep your chin up Lynne. We are here for you. 😍

                            Comment


                              #15
                              Thanks Mathew x
                              ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

                              I'm staying positive and taking each day as it comes.

                              Comment

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