This goes out to anyone who, like me, is facing another day of silent isolation. You are not alone. 😅
-
Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong 🤗😘🤗😁xx -
Whilst I’m not in isolation currently Matthew I understand your situation. When I’m on my own for 10 days in every 14 I find that music is my companion.I’m going to do this even if it kills me! -
I usually put the radio on.when i can think of something profound i will update this.Comment
-
And you are not alone Matthew xDiagnosed July 2020, ALS bulbar onset. PEG and ventilator (mainly at night), and pretty poor speech, but legs still about functioning!Comment
-
Likewise mate. If desperate there's an old Columbo on ch21 at 6.30 called "Try and catch me" (the one with Ruth Gordon). It's still good after all these years.Comment
-
Hugs and thoughts to you Matthew. XComment
-
Thinking of you Matthew
RichardComment
-
I hear you Matthew,Diagnosed 2nd Jan 2020
Both arms/shoulders affected, left worse than right.
Progressive Muscular Atrophy suspectedComment
-
we're all here matthew. you're not alone. we are all alone in different ways.
love and hugs denise xxxxxxxwhen i can think of something profound i will update this.Comment
-
But your mind is full of conversation and engages each of us here xComment
Comment