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    #16
    Iv73, I've read your letters and find them distressing. Me and my wife have had some barneys and she finds it hard as we are no longer the same person being able to do the same things but we soldier on. As Terry asks, have you no close family or friends ? My heart goes out to you, let's find this bloody cure so we can get our lives back.
    Jerry x

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      #17
      Hi IV73

      Originally posted by lv73 View Post
      well it's nearly been two weeks now ...............................
      I'm a bit stunned by your story - makes me realise how lucky I am with support I get which I sometimes take for granted.

      On the power of attorney issue we had somebody come along to the S. London branch Coffee afternoon who was a power of attorney expert. Would you like the contact details? She had got to where she was as a result of dealing with power of attorney in her own life.

      My only caution is I think you are in Scotland and the rules may be different in Scotland to England and Wales but I guess this person if she cannot help might know somebody who can
      Warmly


      Andy

      ​Diagnosed 03/2015. One sided limb onset (arm) sporadic ALS/MND. MND hitting - now 50% left arm and 90% right arm, plus other bits including left shoulder

      "Things turn out the best for people who make the best of the way things turn out"

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        #18
        HI there IV73,

        I've only just realised you are in Scotland. Do ask MND SCotland for support from their advocacy worker in the first instance, but they do also do advice on benefits (perhaps Power of Attorney also?) and offer counselling. You should have a MND nurse-specialist who can act as the gatekeeper to all sorts of help. I can well imagine that finding the energy to access all this will be a struggle, but go for it,
        Your predicament is terrible but there are people out there who would have your back.
        Last edited by kd1; 14 December 2018, 13:24. Reason: typos

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          #19
          My mnd nurse is going to help me with my son if I can see him. I have not seen him for 4 weeks now and it kills me. I have one friend and no family. Advocacy won't help since I have contacted a solicitor. So now it's the waiting game to hear back from her solicitor. Time I am rapidly running out off. In amongst all this my care agency pulled the service without explanation that would have left me being put in a care home. The carers were disgusted with this and now work directly for me now. Finally a small glimmer of hope that life is worth living.

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            #20
            I really hope the mnd nurse can help, you have the right to see your Son

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              #21
              Hopefully with the help of your MND nurse you should get to see your son on a regular basis. It is so sad that your wife does not seem to have any compassion and that it has come to this. Hopefully, you will get to see your son very soon.
              Kayleigh

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                #22
                Oh my goodness my heart goes out to how could anyone be so callous ? I sincerely hope your solicitor can make things happen quickly for you.

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                  #23
                  well I have now been living on my own for a month and still not seen my son. waiting to hear back from her solicitor. I haven't contacted her because to be honest if I seen her again in this lifetime it would be too soon. when she said what she said in that instant I was done with her. no one should use their child as a weapon.

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                    #24
                    We do feel for you Lv;

                    Solicitors are not the speediest of people in the best of times but if she's told them not to rush!!!!!!

                    It is a terrible situation but I hope the carers are going well. Try not to involve them too much.

                    Love Terry
                    TB once said that "The forum is still the best source for friendship and information."

                    It will only remain so if new people post and keep us updated on things that work or don't work and tips.

                    Please post on old threads that are of use so that others see them and feel free to start new subjects and threads.

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                      #25
                      Originally posted by Terry View Post
                      We do feel for you Lv;

                      Solicitors are not the speediest of people in the best of times but if she's told them not to rush!!!!!!

                      It is a terrible situation but I hope the carers are going well. Try not to involve them too much.

                      Love Terry
                      carers going well Terry. the more I have to pay the solicitors the less she will get when I'm gone. my boy is worth every penny.

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                        #26
                        Hi Iv,
                        Good for you for staying brave and strong!
                        I hope that your solicitor doesn't let her solicitor take much longer to respond. It is criminal that you are not being allowed to see your son. I hope that you get justice and that arrangements are made for you to see him very soon.
                        Best wishes,
                        Kayleigh

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                          #27
                          well today I went to mcmillan day care as normal to come back to find she has emptied the house. even covered the security camera. I am still not seeing my son. I called the police but nothing. I am going to a new solicitors tomorrow as the last one has done nothing. today is a new low. I am beyond broken

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                            #28
                            That is terrible. The police must do something surely

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                              #29
                              Hi Iv,

                              I am so sorry to hear that - what a heartless and terrible thing to do to you!

                              I hope that you will be able to get replacements for everything you need.

                              Hopefully, your carers are still lovely and they are treating you very well. You deserve to be treated with respect and kindness.

                              Try to stay brave and strong. I hope you get to see your son very soon.

                              Best wishes,
                              Kayleigh

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                                #30
                                I have suffered mental and emotional abuse from her. she has emptied the house. spent thousands of my money. all that I can take as she is cretin. but it has been two months since I have seen my son. that I will never forgive

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