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Bowel and bladder problems

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  • Pinkelle
    replied
    It's reassuring to know I'm not alone with these problems. I find myself constantly thinking about this problem throughout the day. I've got to stop.

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  • Kayleigh
    replied
    Hi Broken Nails,

    That is interesting comment you made about being dehydrated. I am much more wary about how much I drink these days, and I probably don't drink enough because I want to minimise the number of trips to the bathroom (because it is so time consuming getting there and back!). If I have just got back from the bathroom, there is no way I would have a drink straight away because I want to make sure that I have a long break before I have make yet another trip to 'the littlest room'. I probably risk getting dehydrated if I am not drinking as much as I should - but those bathroom trips are such a hastle these days!

    I hope that your GP is helpful in resolving your bladder problems.

    Kayleigh x
    Last edited by Kayleigh; 2 January 2019, 19:52.

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  • Lynne K
    replied
    Oh dear 'Broken Nails.' I hope that the doc can sort you out. Lynne

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  • broken_nails
    replied
    My GP is waiting on a sample from me as I am peeing far too much for example my chipped tooth made it too painful to drink today and before a drop was drunk I peed 3 times this makes me dehydrated. But I think the getting to the loo too late is common. When walking is so slow. I think some urgency is related to muscle wasting and the metabolites created by that will be excreted in urine which can irritate the bladder. As an aside damn fasiculations caused by bladder to empty without any control on one occasion

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  • Catsparkle
    replied
    I'm sorry things have been so hard for you Pinkelle x I have this too. I used to have leakage as well but that's stopped, which makes me feel it might be MND related for me cos my MND stuff seems to come in waves. Having read this thread I'll ask my doctor about it. When my daughter had urinary issues they said for her to drink a regular amount through the day and go to the loo at regular times in the day, i wonder if that's a help to us as well? I bet they'll say no tea though! Sob sob. I'm not in a wheelchair yet so ha e been dealing with it by buying bigger stretchier pants and very easy to pull up and down thermal leggings from m and s in a bigger size. I found them because someone with MND r reviewed them! They seem to help with my leg spasticity too.

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  • Kayleigh
    replied
    Sounds like the bladder issue is not an uncommon one! Great that we share our experiences/knowledge to help each other and also to know which medical professionals to approach for help.

    Loobylou, I am sorry to hear that it is taking so long to get the medical resolution that you urgently need and that should make your day-to-day life much more comfortable. I hope that things get sorted out for you very soon.

    Best wishes,
    Kayleigh x
    Last edited by Kayleigh; 31 December 2018, 01:14.

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  • loobylou
    replied
    I have the same problem and was told the bladder problem was not necessarily connected to MND and was referred to a urologist. I am on both memedications for this, Solifenacin and Betmiga which can helpa lot and did for a while but not now.

    So have been sent for scans, ususal delay , 7 weeks later waiting for results after lots of chasing GP on case, but she says the likely result barring anything wrong, is a catheter or sub pubic catheter which involves a day admittance. Both need tubes changing every 3 months.

    Fel for you Pnkelle, I live on my own and I get very frustrated, as I am in a wheelchair permanently and have to baord across to the toilet, preplanning doesnt always work, and Tena pants whilst very good are a a great difficulty when you cant get on or off disabled loos. Happy days x

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  • JAY TEE
    replied
    Pinkelle, Yes convinced MND switches lots of things off. I am often constipated for couple of days and as typing now got stomach pain hope my usual Saturday curry and pint clears me. I have taken two Senokot tablets and hope that clears me. I also have pee accidents sometimes just fallen asleep in my wheelchair and ride around in house to my pee bottle. I do sometimes have a leg cramp as well. Luckily now have a pee pad in as well so when out and about hopefully no accidents. When out of the house always careful how much I drink so not struggling to get to the toilet. I do go to local Hospice for a day break luckily access there very easy. Best wishes John

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  • shrew
    replied
    hi hope that ur ok
    Pink, wise to go before loo before ur desperate x

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  • Kayleigh
    replied
    Hope you are feeling a bit better today Pink.
    Kayleigh x

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  • Newbie17
    replied
    Hi Pink, so sorry to hear you’ve been unwell again and now to have this problem too.

    hope you can get help and advice to sort this out very quickly. Take care xx

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  • Pinkelle
    replied
    Thanks for the advice girls. I'm taking kayleigh advice at the moment and making my way to bathroom before I really need it. I will talk to someone in the new year xx

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  • Kayleigh
    replied
    Hello Pink,

    Sorry to hear that you have been so unwell. I hope that you were able to enjoy Christmas with your family.

    I get where you are coming from about the issue of getting to the bathroom in time. Sadly, the days of being able to dash to the bathroom at the last minute are long gone for me and my rollator - now it involves some advance planning to allow enough time to get there!

    Sometimes we actually need the bathroom before we get the feeling that we do. I find it works being pre-emptive about it. For example, instead of waiting until you think you need to go, try making your way to the bathroom before then e.g half an hour or one hour after every meal-time or drink. That may work because we usually need to go to the bathroom fairly soon after eating or drinking anyway.

    Sorry that I can't be of more help. As always, Ellie has provided some great advice, and hopefully if you speak to your GP or nurse in the new year a long term solution can be provided for you.

    I agree that it can feel embarrassing for us to discuss these sensitive issues, but I am sure that the nurse (or other medical professional) will put you at ease by talking things over with your in a sensitive way. He/she will be aware that this is not an easy subject for any patient to deal with and so they should be kind and understanding.

    I find that whatever problems we have, the medical professionals do their best to provide a solution - I find that letting them 'do their thing' and going with the flow of things (sorry about the pun) helps, rather than worrying too much.

    Hopefully, once you get the ball rolling...a solution can be found for you... and that will be a problem solved that you no longer need to worry about!

    I hope that you feel much better very soon.

    Love and best wishes to you and your family,
    Kayleigh x
    Last edited by Kayleigh; 27 December 2018, 23:59.

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  • Lynne K
    replied
    Good luck finding solutions Pinkelle. I can relate to some of what you say and I'm still just about Mobile. I'm not surprised that it's taking its toll on you and feel for you. Lynne x
    Last edited by Lynne K; 27 December 2018, 21:15.

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  • Deb
    replied
    So sorry Pink for your problems ,Not surprised you're feeling so low.

    Sometimes I need to rush to the loo and obviously I can't be quick . Of all the difficulties with MND I find the loss of dignity the worst thing to cope with.

    I hope you get some answers and advice soon.
    Love Debbie x

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