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Rethinking leads to Whythenshaw return tomorrow

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    Rethinking leads to Whythenshaw return tomorrow

    Falling asleep just a couple of hours after getting up is spoiling my day so I am man enough to admit my mistake and resume NIV. Sadly it's too late to do from home so I'm going back to delightful Whythenshaw Hospital tomorrow.. Wish me luck. πŸ˜€πŸ˜€xx
    Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

    #2
    Hope they can find a happy medium between your wants and your needs. xx
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
    Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

    ​

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      #3
      I do indeed wish you all the best. How long do you expect to be in

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        #4
        Three days hopefully but I will be updating live as I have time to pack this time. πŸ‘x
        Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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          #5
          Ok be careful. Be calm and let us know how you're doing 😘

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            #6
            All the best Matthew. I have everything that I can, crossed that it works out this time .🀞🀞🀞Hugs to you and well done for trying it again xxx

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              #7
              Yes Matt hope goes better this time

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                #8
                All the best, Matthew. Hope it goes well this time x
                Diagnosed July 2020, ALS bulbar onset.

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                  #9
                  Good luck Matthew xx I hope that it is a successful visit. Having just had a monitor on my finger for the last two nights I think I will be joining you with a NIV quite soon.
                  Sarah x

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                    #10
                    Good luck Matthew and I hope they can make it easier for you.
                    I’m going to do this even if it kills me!

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                      #11
                      Good luck Matt!

                      Avoid the cheese-grater doc?!

                      https://www.youtube.com/watch?v=3GJE8KtGFnE
                      Copyright Graham

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                        #12
                        Graham if I came out of the beauty salon looking like that I'd certainly have something to say and would definitely want my money back. Id also like to point out that hair dryer looks very dangerous. 😊

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                          #13
                          Good luck Mathew and hope that Wythenshaw look after you well. Love Lynne x
                          ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

                          I'm staying positive and taking each day as it comes.

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                            #14
                            Originally posted by slp View Post
                            ... I think I will be joining you with a NIV quite soon.
                            Sorry to hear that Sarah but, if you need one, you will feel its benefits. xx

                            ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                            Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                            ​

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                              #15
                              A belated good wishes to you Matt, hope it's all going well....
                              Carer for Dad - MND (ALS) 22/4/21 and Mum Alzheimers 26/5/21.

                              Girding my loins and grinding my battle axe for them both... https://forum.mndassociation.org/cor...ilies/wink.png

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