Thanks Mary x
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Like I said get something in writing so you have as much about your condition as possible. Saves time. Put your name and address, nhs number then it will help then find your notes. Save a lot of time if you keep it up to date. Name of someone who knows you. If you hand that over you can make a good argument if something goes wrong.when i can think of something profound i will update this.
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Originally posted by denise View PostLike I said get something in writing so you have as much about your condition as possible. Saves time. Put your name and address, nhs number then it will help then find your notes. Save a lot of time if you keep it up to date. Name of someone who knows you. If you hand that over you can make a good argument if something goes wrong.ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.
I'm staying positive and taking each day as it comes.
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graham ive never quite figured out if the mona lisa was actually smiling.she's probably just thinking that graham just takes soooo long.
come on hurry up we cant wait to see this work of art. youve been hiding it for much too long it needs to make an appearance.
love as always
denise
when i can think of something profound i will update this.
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Yes, me too but I have all of the time in the world and I have it working. Thing is that I can make it work for us. I have devised a system where carers or family or friends may be invited to join the app and may be allowed privileged access to various parts of the app. Is this how you see it working, as you were bob-on beforehand? Love and hugs xxxxCopyright Graham
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