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    #1

    Hot under the collar

    MND has shown this to be true. I get a raise in body temperatures when I feel a strong emotion. 😁x
    Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx
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    #2
    I am so pleased that there was an e at the beginning of that last word.

    Richard
    Last edited by richard; 18 May 2021, 11:35.
    Richard

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      #3
      Oh very good Richard πŸ˜…πŸ€£
      when i can think of something profound i will update this.

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        #4
        And I was going to chip in and say, thank goodness there was an 'a' in the 11th word... but that doesn't make any sense!
        Carer for Dad - MND (ALS) 22/4/21 and Mum Alzheimers 26/5/21.

        Girding my loins and grinding my battle axe for them both... https://forum.mndassociation.org/cor...ilies/wink.png

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          #5
          matthew55 Speaking of collars, you said that someone was making you a collar - did it ever arrive and, if it did, is it any good? xx
          ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
          Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
          ​
          • Likes 1

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            #6
            Matthew you do come up with some interesting headings and facts x
            Diagnosed July 2020, ALS bulbar onset. PEG and ventilator (mainly at night), and pretty poor speech, but legs still about functioning!
            • Likes 1

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              #7
              Hi Matthew ,did you ever get contacted by the hospice?..Hope you aren’t still waiting ?
              Best wishes
              Mary

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                #8
                Been contacted
                ​​​​​​
                Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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                  #9
                  Thats great news Matthew.hope the hospice can offer you some support.
                  Best wishes
                  Mary
                  • Likes 1

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                    #10
                    I am very upset by comments made
                    Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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                      #11
                      matthew55 My sincere apologies if my attempt at humour has upset you. Sorry

                      Richard
                      Richard

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                        #12
                        I'm not upset with anybody in particular. Just the lot of you 😞
                        Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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                          #13
                          I am sorry for for saying that so very sorry
                          Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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                            #14
                            Okay. Now that’s sorted can normal service be resumed please like you give us one if your smile posts
                            • Likes 1

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                              #15
                              We all really like you that's why we take the mickey. It's not meant as harm just fun. 😊
                              when i can think of something profound i will update this.

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