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    Panic attacks

    A new concept for me, a panic attack.
    The first time was last month whilst sat in the passenger seat of the car, seatbelt on in a supermarket car park, and my wife gone in to shop.
    I came over very hot and uncomfortable, unable to undo the seatbelt I started to feel trapped and panicky.
    I have since been advised to play music in this situation .
    Diagnosed 2nd Jan 2020
    Both arms/shoulders affected, left worse than right.
    Progressive Muscular Atrophy suspected

    #2
    Yes, loss of control of the situation and the reliance on others stresses me out too.
    Copyright Graham

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      #3
      The key is to focus your mind on something. 🤗x
      Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong 🤗😘🤗😁xx

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        #4
        I always make sure I undo Stephens seat belt and leave his door so he can get out. Then I worry he will go walk about.

        🤔

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          #5
          Sorry to hear that, Dave.

          Originally posted by Beemer View Post
          the first time was last month....
          So, you've had more than one panic attack? It can easily happen particularly if there's aperceived lack of air/fresh air and/or clothing (or a seatbelt) is tight across throat or chest.

          Glad you found a coping strategy. xx

          ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
          Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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            #6
            Hi Beemer, I panicked this morning as had a coughing fit that made me feel like I was choking.Got some advise from district nurse and 111.My. mouth is dry and tongue cracked for months .I use artificial saliva and recently Oramorph prescribed for the coughing episodes.Sorted out increased dosage, to suck pastilles in the day.Cough worse since starting NIV a week ago but that might be a coincidence.
            The sun is shining and grandchildren coming this afternoon so that should distract me from thinking about myself😂.I agree distraction may help your situation..hope so.
            Best wishes
            Mary

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              #7
              Originally posted by denise View Post
              I always make sure I undo Stephens seat belt and leave his door so he can get out. Then I worry he will go walk about.

              🤔
              Yes Denise, my wife now is releasing my seatbelt when she does hers.
              Diagnosed 2nd Jan 2020
              Both arms/shoulders affected, left worse than right.
              Progressive Muscular Atrophy suspected

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                #8
                Beemer Missed you, Dave! xx
                ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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                  #9
                  Originally posted by Ellie View Post
                  Beemer Missed you, Dave! xx
                  sorry not been online for a while, just catching up now. , so much to read.
                  Diagnosed 2nd Jan 2020
                  Both arms/shoulders affected, left worse than right.
                  Progressive Muscular Atrophy suspected

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                    #10
                    Beemer No, don't apologise - we all need a break sometime. 😘
                    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                    Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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                      #11
                      Yes Beemer I thought you hadn't been around.

                      I had a panic attack on Monday. I was trying to figure out where to park, where to leave Stephen in the wheelchair. What time to leave for the hospital. I just sat down and couldn't move. I felt really anxious. I was shaking. There's only me so I just had to get on with it.

                      Get to the hospital and he's not getting in the wheelchair. He's walking. He's alright. I told him if you can't make it back to the car im leaving him there. I'm not walking back to the car, going around the hospital and getting stuck in traffic.

                      I'm glad I don't drink or smoke because I think I'd smoke or drink myself to death. 😭

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                        #12
                        I think we all have pretty stressful lives with mnd, and a panic attack can be triggered much more easily if the general anxiety levels are high. Anxiety is carried in the body as it tenses up. Relaxation exercises, meditation any good?? Give the tense muscles a stretch out ?? x
                        Diagnosed July 2020, ALS bulbar onset.

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                          #13
                          im going with breathing in and out and holding it for the odd moment. seems to work. havent really got time for much else. talking to you guys really helps.

                          thanks to everyone

                          love and hugs denise xxxx

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