Having Bulbar ASL/MND after just over a year has left me without voice, taste and touch. My hearing and eyesight have improved immensely so that what I thought were hallucinations brought on by opioids were in fact real. I hear every little sound and have developed OCD when cleaning. Every blessing contains curses. 😉🤔🤭😋xx
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Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong 🤗😘🤗😁xx -
Wow Matthew. Sounds amazing
when i can think of something profound i will update this. -
On an aside, I recall reading that eye muscles are not affected by mnd... but not sure if this is correct? The enhanced hearing is interesting.Comment
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Perhaps losing some senses just allows the others to stand out?Mum died with MND in 1979 – My sister and I have a wonky gene, probably inherited from mum. Reckon my MND started sometime in 2018.Comment
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